I am so sorry about what you and your husband are going through. I wish we had some easy answers. Each day is a challenge and I know about the emotional roller coaster we are on. I often question myself if I'm doing things the right way. I treasure the good days my husband has and worry when he's having bad days. Caregiving is very hard, especially when we have to try and figure out they're trying to say. But the hardest thing is seeing and dealing with his depression. It's such a helpless feeling. I don't know how much more time my husband has. He really wants me to make some time for myself and I'm doing that (feeling guilty about it at the same time). But as his symptoms worsen I will be at his side full time. He has decided no more treatments except he may try Avastin to help ease the symptoms to give him a better quality of life in the time he has left. As for your time as a caregiver, I know how tough it is to watch your husband struggling. Stay strong, take good care of him to the best of your ability and take care of yourself. That's so important for your sanity and for your peace of mind.