Connect
← Return to Polymyalgia rheumatica: Any thoughts on my taper plan?
Discussion
Polymyalgia rheumatica: Any thoughts on my taper plan?
Polymyalgia Rheumatica (PMR) | Last Active: Aug 8 6:27pm | Replies (57)Comment receiving replies
In my experience with PMR you it hits you quickly and hard. You’re not tired, you’re exhausted, you don’t have a little pain, you hurt all over, you can barely get out of bed, and someone has to put your socks on for you. Prednisone with all its downsides was a savior for me.
Replies to "In my experience with PMR you it hits you quickly and hard. You’re not tired, you’re..."
I have PMR and GCA. Before treatment I remember lying in bed at night trying to decide if it was worth the pain to turn over to get into a more comfortable position. I also had a lot of trouble putting on socks and also shirts and jackets due to shoulder pain. Driving was difficult too, because of my stiff neck. Since I started treatment (prednisone plus Actemra a little later), I haven't had any pain or stiffness at all.
Connect
Thank you! That helps me figure this out. That sounds horrible! To be hit with pain intense enough that you can’t get out of bed. And exhaustion. Yes I would be begging for prednisone, as you said, even with the side effects, which I do not take lightly.