I'm new to this support group but not new to being a caregiver. My husband is now two years and four months out from diagnosis of Stage 4 Glioblastoma. We are lucky he has lasted longer than the average time of survival. He was 75 at the time of diagnosis and has always been in good health. He has undergone surgery in April of 2023 (very successful) and it was nearly two years when the cancer reoccured. He had resection surgery in May of this year which was successful. He did well for a few weeks but has gone downhill since then. His original symptoms during the first two years was forgetfulness, difficulty in retrieving words and fatigue. His symptoms now have worsened. Some days he is pretty good, others he is forgetful, very confused and fatigued. Fortunately he has no pain and is still able to do a lot, although it is less and less as time goes on. He no longer drives as it's possible he may have suffered a few little seizures. When first diagnosed we were both scared, upset, sad, confused, frantic, terrified. There was not a lot of caregiving necessary at first except for trying to understand what he was saying and mostly dealing with his depression. Now caregiving is much more difficult. He is so upset he can no longer drive and feels "less of a man" for not being able to know how to fix things, or not being able to do some of the mental and physical things he used to do. He is struggling with balance issues. This is where being a caregiver is difficult. When he gets confused, forgetful, substituting words or gets fatigued I have to realize that he can't help it and there is no sense arguing with him or trying to correct him. That only makes things worse for both of us. It's a hard lesson to learn. It is also very hard to watch him deteriorate. My journey is emotionally up and down. I have to let him have self-respect while making sure that he is safe. Making sure he is safe makes him feel angry and he lashes out when he needs help. It's so hard to accept that his personality has changed but I have to deal with it the best I can. I am fortunate that I live in a great neighborhood with friends who will be there at a moment's notice. If you are a caregiver I recommend that you let yourself have some down time and distractions for your emotional sanity. Go out for coffee or lunch with friends, or stay involved as much as possible with other activities. Don't be afraid to ask for and accept help. I don't go a day without thinking about cancer and what is happening and what is going to happen. I think the very hardest thing is watching him go through dealing with a fatal disease, not knowing how I would act if our situations were reversed. My top wish to make him know he is loved by me, our families and our friends and that we are all there for him. And to all you caregivers, make sure you take care of yourself because he/she really needs your support and love.