← Return to Does anyone have gluteal tendinopathy? Any successful treatments?

Discussion
Comment receiving replies
Profile picture for mboc @monicaboc

I've had severe chronic pain of the hip and gluteal and low back regions for 8 years! Seen multiple specialists, physical therapists, pain clinics, injections and various medications. Nothing really works. Lumbar mri does show arthritis/disc disease and hip/pelvis mri shows gluteal tendonitis. Since it won't go away, Drs. say I have gluteal tendinopathy. I used to exercise daily (yoga). Now, If I try to exercise, even walking 1-2 miles, it makes the pain worse. I can't sit comfortably. Every day is a battle to be as comfortable as possible with the least amount of pain I can bear. I agree Norco works the best at pain management. But I do not take it due to all the scrutiny. I do use Elavil which helps my lumbar region about 40%. But I still can't walk or stand without severe pain. The gluteal tendinopathy is hardly ever controlled. I recently started low dose naltrexone as a last resort. Only been on 1.5 mg for 6 weeks. It has helped with my sinus inflammation, but not my hips yet. I'm hoping as time goes by and I titrate up to 4.5 mg I will have some relief. I'll give it 6 months. If still can't exercise, I will try a biologic like enbrel, cosentyx, or rinvoq. I do see a rheumatologist and dermatologist for autoimmune related symptoms. Perhaps try a rheumatologist you may have chronic inflammation (what they claim is my problem). I used lyrica and various nsaids they all provided some relief maybe 45-60%. However, I developed numerous stomach ulcers and can no longer take either. I do get hip joint injections, hip bursa injections and they help but not long enough maybe 3-4 weeks. I'm getting ready to have a medial branch block to see if it helps with the back. However, I feel the bi-lateral hip and gluteal pain are permanent after 8 years. I'm 60yo female and developed osteoporosis in the hips after all the steroids. Not sure what my future looks like. I try to take it day by day. My friends and family are supportive, but that doesn't mean I can just plan things and go. I'm not even able to take a slow walk in the park. Not sure what advice I can offer you. But know you are not alone! I suffer daily and agree Norco helps the most. I decided not to take it, but there may be a day when I have to. If you find something that works let me know and vice versa. I recently met a woman also diagnosed with gluteal tendinopathy. Her dr prescribes Norco so that she can keep her job and not go on disability. Thankfully for her she functions well on it and holds her job as a CPA. But her life is only work and then home nursing the pain. I was forced to take disability about 7 years ago when I could no longer sit or stand to perform any work duties. I even went to the mayo clinic in MN. They said surgery is so risky and not positive outcomes that they don't perform the tendon surgery unless it's to save your life (accident, dog bite, something that severs the tendon). But gluteal tendinopathy is poorly understood and under recognized. I hope you can get the Norco, or find an equivalent that helps. Hugs and prayers!

Jump to this post


Replies to "I've had severe chronic pain of the hip and gluteal and low back regions for 8..."

Was also diagnosed with gluteal tendinopathy. I found regular massage and massage using Graston technique has helped immensely.

@monicaboc
I really feel for you. You are not alone in your pain. I can relate with the spine (stenosis, degenerative disc disease, osteoarthritis, neurogenic claudication) and bilateral gluteal tendinopathy. I also have bilateral high grade partial hamstring tears. The tendinopathy after perimenopause and sitting for my job for 30+ years definitely contributed.

I did have lumbar surgery since standing, sitting, walking was difficult for me (pain, numbness and weakness from low back down to feet) and it helped relieve many of the symptoms. I have Hashimoto’s and hypermobility autoimmune issues, too. It seems my tendinopathy has improved somewhat with rest and since I stopped working (lost job and then went on disability) so I am not sitting at a computer for 9-12 hours a day anymore. My physical movement is limited (also had cervical spinal cord myelopathy compression injury and surgeries) and need to move slowly and not overdo anything or I will hurt myself. For example, I had to bend over to pick up something and had a hard time standing back up and pulled a muscle (my body mechanics have changed with the 3 fusion surgeries in neck/back and I am at higher risk for adjacent segment issues with vertebrae and discs above and below the fusions).

I am just trying to take one day at a time with Jesus. He is my rock, my strength, my hope. I pray for His help to get me through each day and help me cope with chronic pain, disability and depression. I am in my 50s and a single parent of a teen which keeps me going to persevere through the pain.