← Return to Idiopathic Autonomic Neuropathy

Discussion
cctee avatar

Idiopathic Autonomic Neuropathy

Neuropathy | Last Active: Jul 21 2:35pm | Replies (21)

Comment receiving replies
Profile picture for celia16 @celia16

I’ll also add that my ENT diagnosed me with post covid syndrome due to smell/ taste disorder. All my symptoms hit suddenly after covid, but IDK. It’s difficult to figure it out. Smell returned but living with bitter taste that is slightly better, paraesthesia in both feet. Slightly numb feet with full sensation. Very annoying. Balance pretty good though slightly off. One intermittent quarter size hot spot on one foot that hasn’t surfaced in over a month….yaay. Several podiatrists said not neuropathy. Awaking to very painful numb hands. Only if I lay on them. Hand expert believes carpel tunnel but not sure.
First neuro viewed emg, mri and says not neuropathy. Second neuro diagnosed vitamin b12 deficiency and believes restoration of it will resolve issues. He’s moved. Hmmm….idk. B12 takes a while to restore…..

My endocrinologist says it’s common for long term diabetics to get neuropathy, but isn’t sure if that is my problem.

I used to have body wide fasciculations and was certain I had Parkinson’s, MS or ALS. Didn’t according to neurologists.

My last mission is to get spine scan to rule out that causing my symptoms, but I have hurt my ankle and must address that first. Lol. But, other than those things, I feel great and probably better than ever in my life. Seriously. Best of luck to you. Please post what you find out.

Jump to this post


Replies to "I’ll also add that my ENT diagnosed me with post covid syndrome due to smell/ taste..."

I hope you can get them all sorted out, and feeling great really should rule out most everything that is super bad. Same with you, let me know how you are doing. I hate anything neurological it’s always so vague and hard to tie down.