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Spine Health | Last Active: 3 days ago | Replies (22)
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Replies to "I just recently got my mri results back but haven't really talked to anyone yet. My..."
← Return to Recently Diagnosed
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@januaryjane I hate to call out your neurologist about stenosis and urinary control issues, but stenosis may cause it even mild stenosis. I went through it myself. This is why you need a spine surgeon’s opinion. Neurologists don’t do surgery and focus on pain management and diagnosis of nerve problems. I realize driving is inconvenient, but it is worth it. I saw several spine surgeons within 2 hours of my home, and none got the diagnosis correct. I went to Mayo and that was a 5 and a half hour drive and that was really worth it. I got my coordination in my arms back, I got my energy back and stopped the progress toward disability. You’ve already been living with this a long time. Wouldn’t it be worth finding out if surgery can fix this? I can tell you, I was scared, but I figured out how to cope with that and the surgery wasn’t as bad as I imagined and I wasn’t in horrible pain. I even chose not to take pain medication because it nauseated me and I could manage without. I have no regrets. Incontinence symptoms can become permanent if spinal cord damage occurs. Your doctor doesn’t know when that permanent damage will happen, so earlier intervention is best. There is a waitlist for appointments with good surgeons and you may want a few different opinions. You need information to make an informed choice.