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Recently Diagnosed

Spine Health | Last Active: 3 days ago | Replies (22)

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I just recently got my mri results back but haven't really talked to anyone yet.
My neurologist said he would look at the films and let me know what he thinks. But he didn't think mild stenosis would cause urinary problems. A Rheumatologist ordered the mris and didn't go into depth because he was looking for inflammatory arthritis. So, im kind of at the beginning. But I've been getting trigger point injections with steroids for years, which help and tried cervical nerve ablations last year that were not successful. Im seeing a new pain doctor at the end of the month. I've done numerous rounds of pt that really don't help in the longterm.
My neurologist knows about weakness and pain and dropping things but only offered pt at the time since my last nerve conduction test revealed no issues in my hands. That was at least four years ago.
You get shotty treatment/pickings around here. Most specialist are in 2 major cities where I live so that means hours of driving which I can't do all the time.

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Replies to "I just recently got my mri results back but haven't really talked to anyone yet. My..."

@januaryjane I hate to call out your neurologist about stenosis and urinary control issues, but stenosis may cause it even mild stenosis. I went through it myself. This is why you need a spine surgeon’s opinion. Neurologists don’t do surgery and focus on pain management and diagnosis of nerve problems. I realize driving is inconvenient, but it is worth it. I saw several spine surgeons within 2 hours of my home, and none got the diagnosis correct. I went to Mayo and that was a 5 and a half hour drive and that was really worth it. I got my coordination in my arms back, I got my energy back and stopped the progress toward disability. You’ve already been living with this a long time. Wouldn’t it be worth finding out if surgery can fix this? I can tell you, I was scared, but I figured out how to cope with that and the surgery wasn’t as bad as I imagined and I wasn’t in horrible pain. I even chose not to take pain medication because it nauseated me and I could manage without. I have no regrets. Incontinence symptoms can become permanent if spinal cord damage occurs. Your doctor doesn’t know when that permanent damage will happen, so earlier intervention is best. There is a waitlist for appointments with good surgeons and you may want a few different opinions. You need information to make an informed choice.