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Increasingly Difficult to Accept Peripheral Neuropathy
I am finding it increasingly difficult to accept peripheral neuropathy it's all very well people coming up with suggestions but carrying them out is quite another. I am no longer who I was and think I am boring and miserable because I am now. Pain takes over and I have become fearful nervous prone to panic attacks which are awful because I start to shake with worrying about the future. I have other worries anyway but if this damned PN would go away it would help.
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SKY, try Willow Balm cream. I like it better than IcyHot.
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1 ReactionThank you for sharing with us. It sounds like you are mixed--I hear despair but also that you are far from willing to give up. Getting a dog will bring you comfort and exercise. I have an 8 lb poodle and we go out for walks 4X per day. As for putting a man on the moon, scientists now seem to know a great deal of how aging affects us on a cellular level and how anti-aging might become a reality in the foreseeable future--so why can't they address PN more successfully. I am very fortunate to find the cause of my PN-celiac disease--it took several months to get there--my neurologist did a blood test so now I have dropped everything gluten and feel better. Do not give up! And, I use a generic version of Icy Hot for lower back pain--better than Lidocaine and costs only $1.79. You can find it in your local 99cent stores. I wish you the best.
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2 ReactionsWow … I know this feeling. I have said: “the old Maggie is gone and I don’t know where she is.” (I have stage 4 cervical cancer and I’m dealing with neuropathy from chemo, among other issues.) I am dealing with defining my new identity and limitations within that identity. Thank you.
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3 ReactionsGood morning, margitdill (@margitdill)
Yours is a tough one, no question about that, but the essentials are ones to which most of us can relate: That puzzling morning when we look in the mirror and ask ourselves, "Who is this person?" Most of my life, my identity has been in flux; never, however, as confounding as it was in the first five or six months following my PN diagnosis.
You say, "neuropathy from chemo." It may be of little consolation, but I've a good friend who's been doing chemo since the fall of last year, She, too, developed PN symptoms. (My PN is idiopathic.) Knowing I, too, had PN, we would meet to exchange "tips." Recently, she has told me that––although she continues with her chemo––her PN symptoms have vanished.
Your post will remain with me throughout today, margitdill, and most likely for many days to come.
Cheers! … and I mean that most earnestly.
Ray (@ray666)
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3 ReactionsWow … that is great news from your friend. Very encouraging…thank you!
I wish I had some good things to say and recommend. I'm just angry most of the time honestly. Type 3c diabetes caused peripheral neuropathy from knees down, bilaterally. No balance, having trouble walking more and more everyday. Falling a lot. My ray of sunshine is that I know many of you are dealing with severe pain with your neuropathy. I have no pain, completely numb, no feeling at all, so I feel lucky. Not sure if the pain many of you are feeling is in my rear view mirror, or still in front of me. The sage old advice "one foot in front of the other" is so true at this point. I'm working out as much as possible, and getting assisted strteching in an attempt to maintain mobility as long as I can. Thanks for welcoming me here. It's great to have a resource like this
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1 ReactionI was diagnosed with PN in 2013. It has taken its toll on my feet, legs, toes. I used to suffer the pain and restlessness only at night but for the last 5 years I have pain all the time day & night. When I try to log in some walks I can only go once around my mobile home park track. My dr gave me gabapentin. It made it worse. Any suggestions ?
LDN low dose naltrexone.
It’ll get rid of the pain but not the numbness & it’s been discussed on this site with positive results many times.
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1 ReactionJust a thought. Some hospitals have a pain management program and if you are near any city, I think I'd place a call. An alternative could be a pain management physician. I wish you the best and sorry to hear about your situation.
Hello,
I’m really sorry about your constant pain. I was just diagnosed February of this year. It started the second half of last year with just some tingling and numbness at times. Now I have continuous tingling, numbness, burning, pain from the sole of my feet to above the ankles. My feet feel like they’re in hell. My primary doctor referred me in January of this year to a neurologist who diagnosed and confirmed the condition which is idiopathic and progressive. The first treatment which I am now tapering down to eventually stop it has not worked at all. We shall try a different treatment when I see the neurologist in September. Unfortunately, since there’s absolutely no cure, treatments are aimed at slowing down the progression only and only when and if the correct treatment is found. Yes, it’s trial and error.
If you don’t have a neurologist, I suggest you try finding one who is knowledgeable in the neuropathy area and see if you can possibly find some relief.
I can definitely sympathize with you and I wish you the best.
Take care and have a serene weekend,