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My partner has NTM Abscesses, We think he picked it up in Arizona where we lived 5 years ago or from scuba diving in Hawaii. It took a while to get diagnosed at Univ of Penn, but once it was, the treatment started swiftly. 4 oral antibiotics for 4-5 months, then dropped one of those and went on 12 weeks of home IV treatments with two additional antibiotics. At that point the sputum samples showed no growth so we stopped the two IV’s and added one inhaled antibiotic along with continuing the 3 oral antibiotics. Last CT showed that one area might not be responding so they did a lung bronchoscope for cancer and to better sample the area. Cancer was negative and the tests for NTM-A were also negative. All the tests show that the NTM-A has cleared. However, due to the recurrence risk, he’ll stay on the 3 oral and 1 inhaled antibiotics for 9 more months. We do take precautions at home as well (regular: vent cleaning, house cleaning, carpet cleaning, water and air filtration, masking when out of the house, etc.) but it really doesn’t crimp our life style and we spend lots of time with the grand kids, neighbors and friends. Hoping to resume travel soon as well. This is a long road, but its worth it.

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Replies to "My partner has NTM Abscesses, We think he picked it up in Arizona where we lived..."

Thank you so much for outlining the antibiotic regime. It is a long road! How long did it take him to start feeling better? Meaning... heavy chest, constant coughing, impared breathing, fatigue? I'm still a little confused as to whether symptoms like this are from the bronchiectasis, the NTM, or both. I know it also depends on the species and genetics of the NTM so I might be put on a different path. Thank you for the positive note at the end. I'm not feeling very positive right now as you can imagine.