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Support for the youngsters (diagnosed with stage 4 at 54)
Osteoporosis & Bone Health | Last Active: Mar 25 3:55pm | Replies (19)Comment receiving replies
Hi Simran, I was diagnosed with osteoporosis last year in October and at 32 I was shocked. My doctor and me believe it came due to my deporevea birth control but they can't 100% confirm. It came to a shock and it came with a lot of feelings. Anger depression being the hardest ones. It doesn't help that anytime I talk to a provider I get " your to you g for this" speech. I know I'm too young for this but this is my life. It took me 6 months to see a specialist and 2 months of testing and reviews to get treatment. I just started my treatment this week and it's been hell to try to get people to take me seriously because of my age. Things I can say have helped me. Find a groups or a therapist so you can vent, having this is exhausting and you need to have someone to talk to. Second, write down how you feel and what hurts, when you go to the doctor there going to ask so many questions and it's hard to remember with so much going on. If you write down things it makes it easier to remember what you wanted to talk about. Last thing I can advise is trust your body, everyone is different and what works for someone else doesn't mean will work for you. I wish you the best in this journey , know your not alone!
Replies to "Hi Simran, I was diagnosed with osteoporosis last year in October and at 32 I was..."
@kay15
Hello Kay,
So sorry to hear you are going through this. I am going through something very similar. It’s very hard to find doctors to take you serious at a younger age. How did you end up finding a doctor? I’ve been researching doctors, but it seems like most of them deal with post menopausal women or older adults. While, I’m not as young as you. I was diagnosed at 44 with late stage osteoporosis, and have not been able to find a doctor to treat me. I was told to get a DEXA scan, by a random Dr in passing, when I was in my 30s and my doctors would not send me in for one because I had not broken a bone and they thought that I was just being paranoid. Finally at 44 I was able to advocate for myself and convince my Dr to order a scan. I was told I’m not old enough and my insurance will not cover it. Sure enough the scan came back and I was already in late stage. Now the problem is trying to find a doctor that deals with women that are not going through menopause. Any advice would be wonderful.
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Thanks so much, Kay and so sorry you are going through this.
I did a quick scan of studies and it looks like Depo Provera is correlated but a few articles say BD should improve after stopping Depo.
https://pubmed.ncbi.nlm.nih.gov/40372778/
https://pubmed.ncbi.nlm.nih.gov/36699167/
I think what has been hardest is that I look fine so everyone treats me that way while internally I am always a little or a lot anxious about fractures. My PCP and gyno were unhelpful. I am frustrated that the axis I referred to above around depression and anxiety has not come up. I had to do that research on my own. Fortunately, I do have a great therapist.