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Hormone Treatment Experience

Prostate Cancer | Last Active: Jul 22 4:03pm | Replies (51)

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Good to hear! I also try to deal with the side effects, which for me means continuing to understand their causes and best remedies. I'm making a list of questions for my Monday urologist meeting and plan to tell him that I'm disappointed that, with Testosterone back in the normal range, the big 4 are still in place:
- [ ] 10 lbs. belly fat with same or better diet/drinking
- [ ] Energy/Strength: can’t run for long; prior to ADT able to run 5/10 K
- [ ] Still getting Hot Flashes
- [ ] ~80% erections; less concerned than above

My questions will be:
- [ ] Do all symptoms result from 4 months of Orgovyx, i.e. not from radiation?
- [ ] Best ways to lose weight? (Yes, I know diet and exercise)
- [ ] Are there any other non-drug/non-invasise ED methods, e.g. Acoustic wave therapy (AWT)
I have had very good results treating bone spurs/achilles tendonitis with Acoustic wave therapy, also known as extracorporeal shockwave therapy (ESWT). Think of it as meat tenderizer...it smooths the tissues.

BTW, I was surprised that I also didn't lose libido even when my T was super low...I guess it's hard wired in some of us.

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Replies to "Good to hear! I also try to deal with the side effects, which for me means..."

Best way to lose weight is to weigh yourself every day and eat based on what you weigh. That has allowed me to stay at my 189 target at 6’4”. I do have a little bit of belly I go to the gym 2-3 days a week and do around 70 situps each time. That seems to keep it from getting any worse since I’m not gaining any weight.

I use a Withings scale that gives you weight accurate to a 10th of a pound. I weighed 189.2 this morning. I can eat normally. It keeps track of how much water you have in your body, How much lean mass? Muscle and fat weight also shown. The app that works with the scale, also syncs with the Apple health app and has all of its information.

It is really helped with keeping my weight under control.

I exercise at least one hour daily (intense yoga 3x, weightlifting 2-3x, running/hiking daily), eat a low-carb, high protein diet with only fresh foods (no processed) and meditate daily. I have not gained any weight and the exercise helps with the depression. Once your testosterone level drops to zero or < 4, you may have ED. Consider IPP surgery. I just wish I had done it sooner. I also take Calcium with D3 1200 mg daily. Stopping caffeine has helped with the hot flashes and I don’t drink alcohol. Waking up 2 or 3 times a night with hot flashes really sucks! Keeping a positive attitude as best you can and remembering that you are at least not dying of cancer this week helps.