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Prostate Cancer | Last Active: Jul 22 4:03pm | Replies (51)
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I was on ADT (Lupron, Abiraterone) for 3 years. I’ve been off for 10 months. I still have all of the side effects except high blood pressure and high blood sugar. I fixed the ED problem with IPP surgery and my testosterone is SLOWLY returning. It is now 67. Since I did not lose my libido while on ADT, my wife and I continued sexual relations without penetration the whole time ( we called it lesbian sex). We are now able to have the real thing. Since I don’t know whether I will have to go back on ADT, I am doing my best to learn how to live with the side effects. It is not easy, but I feel that I am making progress.
Replies to "I was on ADT (Lupron, Abiraterone) for 3 years. I’ve been off for 10 months. I..."
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Good to hear! I also try to deal with the side effects, which for me means continuing to understand their causes and best remedies. I'm making a list of questions for my Monday urologist meeting and plan to tell him that I'm disappointed that, with Testosterone back in the normal range, the big 4 are still in place:
- [ ] 10 lbs. belly fat with same or better diet/drinking
- [ ] Energy/Strength: can’t run for long; prior to ADT able to run 5/10 K
- [ ] Still getting Hot Flashes
- [ ] ~80% erections; less concerned than above
My questions will be:
- [ ] Do all symptoms result from 4 months of Orgovyx, i.e. not from radiation?
- [ ] Best ways to lose weight? (Yes, I know diet and exercise)
- [ ] Are there any other non-drug/non-invasise ED methods, e.g. Acoustic wave therapy (AWT)
I have had very good results treating bone spurs/achilles tendonitis with Acoustic wave therapy, also known as extracorporeal shockwave therapy (ESWT). Think of it as meat tenderizer...it smooths the tissues.
BTW, I was surprised that I also didn't lose libido even when my T was super low...I guess it's hard wired in some of us.