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Increasingly Difficult to Accept Peripheral Neuropathy

Neuropathy | Last Active: Aug 10 12:43pm | Replies (233)

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I'm 58. I am a diabetic since 2017 and peripheral neuropathy started with my feet (tingling, numb, painful nerve discomfort, etc..). Until this day(2025), I have been dealing with incurable, unmanageable, uncontrollable diabetes II and painful body peripheral neuropathy from feet, legs, waist and hands starting to become more and more numb especially feet as I have to wear two soft socks. And fell 5 times as legs went dead as no longer functioned properly. This was the most terrifying and scary feeling as I thought became suddenly paralyzed.

After 8 years with such painful conditions, you DO NOT want the neuropathy (PN-nerve damage) to grow, spread and affect your entire feet, calves, thighs, waist and hands as it is an extremely terrible feeling along with an uneasy painful and frustrating state of mind, major anxiety, stress, sleepless nights, nervousness with daily activities, etc.. And not to mention, impotent for the last 7 years and specialized doctor(s) want 20K to make you believe that they can help with it. I declined!

Sadly, advise for these serious mental and health complications and conditions were experienced as "NO CURE" ! The final solution mentioned by Neurologist was to amputate feet, and legs, and maybe hands. I could not live with myself with such a decision. I will continue to endure and suffer which I have accepted to convince my mind this nasty discomfort is strictly a part of my remaining style way of my life and golden years.

As I feel discomfort and pain, I purchased a 3 year dog (German Shepherd) to help encourage, smile, and walk at least 4 times a week which helps body, muscles, and seldomly nerves but still painful. He is amazing! I seriously regret not adopting a dog many years ago...

Sadly, I found NO devices, creams, massagers, meds, specialist, doctors, etc. to ultimately eliminate nor majorly reduce the discomfort and sleepless nights of Peripheral Neuropathy not to mention diabetes II(except for short/long term insulin to lower blood sugars on a daily basis). Again, I molded and learned to ignore both awful symptoms as it has been a part of my remaining life. An extremely sad way to live into your golden years.....

My advice is to eat healthy, "exercise', possibly adopt a pet for serious encouragement, and most definitely "Save your Money"…! As far as diabetes, I take insulin each day and eat healthy to help maintain blood sugars and when very low or high, PN brings out more of the dreadful and nasty pain in feet, legs and waist plus hands. And ultimately alters and brings extremely sad moments in my mind in which I try to fall asleep with sleepy pills and when at work must excuse myself some way to regain some control.........

My very temporary relief is 'icy hot' cream rubbed around feet, legs, hips, and hands which becomes expensive $12 week or two. With lengthy research, studies, doctors, specialist, I am still with the discomfort and pain as I found 'no cure.' We can place a person on the moon but can not find a cure for PN which I sometimes feel my life is pretty much over.

i do not mean to scare anyone but this is simply my long dreadful experience with PN.

My prayers are with all of you …

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Replies to "______________________________________________________________________________________________________ I'm 58. I am a diabetic since 2017 and peripheral neuropathy started with my feet..."

SKY, try Willow Balm cream. I like it better than IcyHot.

Thank you for sharing with us. It sounds like you are mixed--I hear despair but also that you are far from willing to give up. Getting a dog will bring you comfort and exercise. I have an 8 lb poodle and we go out for walks 4X per day. As for putting a man on the moon, scientists now seem to know a great deal of how aging affects us on a cellular level and how anti-aging might become a reality in the foreseeable future--so why can't they address PN more successfully. I am very fortunate to find the cause of my PN-celiac disease--it took several months to get there--my neurologist did a blood test so now I have dropped everything gluten and feel better. Do not give up! And, I use a generic version of Icy Hot for lower back pain--better than Lidocaine and costs only $1.79. You can find it in your local 99cent stores. I wish you the best.

lillaady-

I have had PN for many many years and visited with many specialist, doctors, hospitals, neurologist, etc, and if there was any actual remedies, cures, and solutions in the medical system, they would have known about the cures NOT make you believe taking pills, medications, insulin, etc. will eventually cure the painful discomfort health issues.

There pills, insulins, medications, consultations, etc.. are stupid Band-Aids with many side affects but who cares, right?!? We are contributing to their rich life styles and that's all. I rather trust a doctor with my life that would say, there is no cure and you are pretty much SOL but not one ever bothering telling me except for body part amputations.

Sadly, we trust these specialist, doctors, etc. to heal our medical and health issues but the truth is, they make millions and millions without a care in the world as long they receive their insurance claims and money. This may sound a bit harsh but its the real truth ! They are no different from majority of society which take and steal money for their own pleasures and benefits. Its extremely heart breaking!!!

It is a sad and ugly world we must better learn to deal and understand while we age. The goal for majority of the world is "how much money can I make" from clueless people. And I was one of them!

And into the golden years, I will continue to deal with the pains and discomforts plus attempt and fake to enjoy the rest of my short life the best I can with my precious dog.