Lantus Solostar

Posted by earringgirl1000 @earringgirl1000, Jul 17 2:39pm

I have been taking the Lantus Solostar for a little over a year I feel horrible does this affect anybody else. I don’t have energy anymore I don’t get anything done on my days off anymore what’s up?

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Profile picture for cheyne @cheyne

Hi,
I don't like being untreated or unmanaged, with Autonomic polyneuropathy and diabetic neuropathy happening it is not a nice place to be. Being off meds is great until you consider the damage it is doing to my body. So far it is affecting my kidneys GFR34, digestive system completely stuffed, hands and feet up to my knees having problems. For the most part my eyes are still fairly good most days. I don't recommend not treating ailments unless there is a desperate reason to do so. I have to go untreated because the cure is worse than the cause in the present time, but the consequences are unrestricted damage is being done without a doubt. I chose to live a comfortable live over a miserable one no matter the consequences always hopeful for a change in the future. Until people are in my position they can't comprehend the difficult choices I have to make.
Cheers

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@cheyne , have the doctors confirmed an actual allergy to all insulins? It’s quite rare, but there are also other medications for high blood sugar. Sure hope you can get some help with that. Sounds like you are dealing with a lot.

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Profile picture for celia16 @celia16

I would caution anyone with high glucose levels about forgoing prescribed insulin. High BG numbers can cause diabetic ketoacidosis, organ damage, and death. I’d work closely with health care professionals to find the right dosage amounts.

Some type 2’s require long acting insulin AND fast acting with meals to maintain good levels. Also, some people are initially diagnosed as type 2, but later determined to be type 1. With the right doses, the bg will come down. A cgm is often helpful to tweak those doses. There are also medications other than insulin that can help with blood glucose levels. I’d especially explore those.

Refusing to take insulin when it’s needed is very dangerous. I’d seek help with understanding that situation and how to treat it.

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Hi,
As I said not everyone can tolerate medications. I have exhausted all medical avenues and fail to tolerate all of them for diabetes treatment. It is not a matter of refusing to take insulin it is a matter of fact they have ALL turned me into something I don't like and no one around me likes, very aggressive and in your face. The worst occasion was when I had someone suspended by the throat off the ground. I'm not sure which one of use got the biggest shock. It is not as simple as you seem to think. We are not all the same and can react in very different ways to the same medication. I would advise working closer to see the full picture and not suggest it is a choice to go without treatment. Sorry if this offends you but your inference it is a choice offends me. When I'm told there is no other medication available to me, what choice is that, not mine! I really get tired of people who haven't experienced what I experience brushing it off as my choice. It doesn't mean it doesn't happen because you have not heard of it, just means you haven't heard everything. My Doctors are starting to learn I have a huge problem finding treatment, something they have never seen before. I know of one other diabetic with the same reaction I have from all insulins, but not as violent.
Cheers
Cheers

REPLY
Profile picture for celia16 @celia16

@cheyne , have the doctors confirmed an actual allergy to all insulins? It’s quite rare, but there are also other medications for high blood sugar. Sure hope you can get some help with that. Sounds like you are dealing with a lot.

Jump to this post

Hi,
The reaction is to the carrier chemical that suspends the insulin, insulin is not just insulin. I have trialed all the pills availible with varying reactions and moved on to insulins without success. The local diabetic clinic have shrugged their shoulders and given up leaving me no where else to turn. I'm resigned to my fate but still hope something will come along to treat me.
Cheers

REPLY
Profile picture for cheyne @cheyne

Hi,
The reaction is to the carrier chemical that suspends the insulin, insulin is not just insulin. I have trialed all the pills availible with varying reactions and moved on to insulins without success. The local diabetic clinic have shrugged their shoulders and given up leaving me no where else to turn. I'm resigned to my fate but still hope something will come along to treat me.
Cheers

Jump to this post

I really hope you can find resolution. If I may ask does the insulin or the carrier cause you to have anger issues.

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Profile picture for cheyne @cheyne

Hi,
As I said not everyone can tolerate medications. I have exhausted all medical avenues and fail to tolerate all of them for diabetes treatment. It is not a matter of refusing to take insulin it is a matter of fact they have ALL turned me into something I don't like and no one around me likes, very aggressive and in your face. The worst occasion was when I had someone suspended by the throat off the ground. I'm not sure which one of use got the biggest shock. It is not as simple as you seem to think. We are not all the same and can react in very different ways to the same medication. I would advise working closer to see the full picture and not suggest it is a choice to go without treatment. Sorry if this offends you but your inference it is a choice offends me. When I'm told there is no other medication available to me, what choice is that, not mine! I really get tired of people who haven't experienced what I experience brushing it off as my choice. It doesn't mean it doesn't happen because you have not heard of it, just means you haven't heard everything. My Doctors are starting to learn I have a huge problem finding treatment, something they have never seen before. I know of one other diabetic with the same reaction I have from all insulins, but not as violent.
Cheers
Cheers

Jump to this post

Wow that has to be awful dealing with that. I'm very sorry. I have a sister who's been diabetic for 30 years. My inquiry isn't about your insulin problem. I'm wondering if there's something you can take for your other issues related to the outbursts and anger. I know as a cancer patient I had to stop my hormones. My hot flashes were horrible. I started taking 20mg citalopram then halved them so now 10mg have cut the hot flashes by about 60%. I also noticed that I have more energy and more interest in doing things around the house. I'm not a huge fan of antidepressants, hence taking lowest mg possible, but have found a happy medium. If I decide I want to stop, I'll just half them again to 5mg and taper off. The dose is so low, but still does its job, that I'm not worried about withdrawal. I truly hope you find something that works. It's horrible waking up not knowing if your day will be calm or really physical. I'll say a prayer for you too. 🙏🏻❤️

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Profile picture for carol1024 @carol1024

Wow that has to be awful dealing with that. I'm very sorry. I have a sister who's been diabetic for 30 years. My inquiry isn't about your insulin problem. I'm wondering if there's something you can take for your other issues related to the outbursts and anger. I know as a cancer patient I had to stop my hormones. My hot flashes were horrible. I started taking 20mg citalopram then halved them so now 10mg have cut the hot flashes by about 60%. I also noticed that I have more energy and more interest in doing things around the house. I'm not a huge fan of antidepressants, hence taking lowest mg possible, but have found a happy medium. If I decide I want to stop, I'll just half them again to 5mg and taper off. The dose is so low, but still does its job, that I'm not worried about withdrawal. I truly hope you find something that works. It's horrible waking up not knowing if your day will be calm or really physical. I'll say a prayer for you too. 🙏🏻❤️

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Hi,
Putting up with the ravishes of Diabetes is the better of the two evils for the moment. Doctors have tried to medicate my temper and all it ever did was to make it permanent 24/7. My doctor is starting to realise medication for me is a big problem. As time goes by it is getting worse and there is no answer as nobody has ever reported such side effects. Fortunately I'm able to manage the problems and carry on life as best I can, at least for the moment I can control the situation by stepping away from tricky situations.
Cheers

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Several years ago I had an Endocrinologist Dr. who suggested a book, "Doctor Bernard's Program to Reduce or Eliminate Diabetes". His program was to eliminate animal fat and Protein from your diet--become a Vegan! My wife was labeled Pre-Diabetic and going vegan brought her back to normal. At the time my insulin intake was running close to 50 units per day. Within a month my wife was normal and my insulin intake was 10 units per day. I have stayed Vegan and we started cold turkey. A year ago, I ate one lamb chop. No problem. Since I started on the Vegan diet, it has gotten easier to find restaurants that serve vegan food. The Herbivorous Butcher shop in MSP make Vegan fake meat which tastes great but has the same price as real meat.

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Hi,
Having CKD I don't touch man made or adulterated food stuffs at all. They all have a bad habit of adding in artificial this or that which notoriously comes back to bite years later when it is discovered to be bad for us. I try to stick with natural and fresh with minimal red meat, no salt or sugar and it is boring but required to maintain kidney function. Currently trialing metformin for the third time and it hasn't started well. Day one pure aggression yet again, immediately stopped it to give some thought to what I should try next. So as it can't be cut as this changes the delivery time frame I'm opting to take 500mg every three days to see if I can break the side effects I experience. If this dosen't work it's goodbye to medication for sure. Interesting my doctor is starting to agree that my thoughts of the body being used to higher amounts of blood sugar for so long it complains bitterly when it is artificialy dropped. I get the same reaction with blood pressure medication and only take enough to trim the really high BP to stop the 24/7 migraine. Keeps me around 150/100, comfortably.
Cheers

REPLY
Profile picture for rollingf @rollingf

Several years ago I had an Endocrinologist Dr. who suggested a book, "Doctor Bernard's Program to Reduce or Eliminate Diabetes". His program was to eliminate animal fat and Protein from your diet--become a Vegan! My wife was labeled Pre-Diabetic and going vegan brought her back to normal. At the time my insulin intake was running close to 50 units per day. Within a month my wife was normal and my insulin intake was 10 units per day. I have stayed Vegan and we started cold turkey. A year ago, I ate one lamb chop. No problem. Since I started on the Vegan diet, it has gotten easier to find restaurants that serve vegan food. The Herbivorous Butcher shop in MSP make Vegan fake meat which tastes great but has the same price as real meat.

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Protein and animal fat have only a small effect on insulin needs. Being a vegan doesn't cure diabetes. I never understood why people who didn't eat meat liked fake meat!? Glad you are happy with the results of your dietary changes!

REPLY
Profile picture for cheyne @cheyne

Hi,
As I said not everyone can tolerate medications. I have exhausted all medical avenues and fail to tolerate all of them for diabetes treatment. It is not a matter of refusing to take insulin it is a matter of fact they have ALL turned me into something I don't like and no one around me likes, very aggressive and in your face. The worst occasion was when I had someone suspended by the throat off the ground. I'm not sure which one of use got the biggest shock. It is not as simple as you seem to think. We are not all the same and can react in very different ways to the same medication. I would advise working closer to see the full picture and not suggest it is a choice to go without treatment. Sorry if this offends you but your inference it is a choice offends me. When I'm told there is no other medication available to me, what choice is that, not mine! I really get tired of people who haven't experienced what I experience brushing it off as my choice. It doesn't mean it doesn't happen because you have not heard of it, just means you haven't heard everything. My Doctors are starting to learn I have a huge problem finding treatment, something they have never seen before. I know of one other diabetic with the same reaction I have from all insulins, but not as violent.
Cheers
Cheers

Jump to this post

Insulin is a hormone, not a medication.

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