Non-diabetic neuropathy

Posted by mscaroline2014 @mscaroline2014, Jan 20 6:49pm

Before I tell my story, let me state that I was a daily wine drinker for several years. My neuropathy started in my feet in 2017. It did not progress beyond my feet for several years. I stopped drinking in 2023, and at that point, my neuropathy was still confined to my feet. My doctor said that alcohol cessation should stop the progression of the neuropathy. I also started on a weight loss drug at that time. I weighed 157 lbs and I am 5’2”. The medicine was a success. I lost 54 lbs in five months, but also lost a large amount of muscle. I continued on the medication on the advice of my doctor. She said I would need to stay on the meds in order to maintain weight loss. Long story short, I was not hungry and from March, 2023 until February, 2024, I ate nothing but fruit, popcorn and salads. I ate very little protein during that year. Anyway, about six weeks after starting the medication, I noticed my knees felt weak. I spoke to my GP about it, and she said it was not associated with the medication. However, I became weaker and my neuropathy went into hyperdrive. I finally took myself off the medication in February, 2024, started eating a normal diet. I was able to see a neurologist at Vanderbilt and she said my neuropathy was probably caused by several factors, one being alcohol but also rapid weight loss, nutritional deficiencies and possibly idiopathic. That was in October. She also said my neuropathy should slow or cease progression with the modifications I made. However, my neuropathy is getting worse. I now have numbness all the way up my thighs, and, in the last two months, numbness in my rear. I am also developing a twitch on the left side of my face. I feel so discouraged and alone. It feels good to have a group of people that understand.

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@kdehaven

I played in the NFL for 7-years, 6’5”-310#, developed non-diabetic neuropathy in my feet. Doc recommended losing weight to help relieve chronic pain. Went down to 225#, zero relief but I can’t ignore other health benefits of weight loss. I go to a pain clinic every month, medicine helps about 50%.

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I've had neuropathy pain in both feet for about 20 years non-stop 24/7!I'm not a diabetic and the neuropathy came on suddenly!
I've tried all the med's tha are suppose to help with the pain but with no results!
I've been to numorious pain clinics and neuopathy clinics with no good pain results!
I had an E R doctor tell me that there is no medicine, no treatments and nothing that will help with the pain!!

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@ann78

Has anyone received the newest treatment from Chiropractors that has helped.

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I have heard that a Chiropractor does not help with the pain from neuropathy!

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@closer0043

Have they considered your spine? Do you have any back pain? Whenever a Doctor utters idiopathic, I want to call them lazy. Don’t give up, and never stop getting protein. What good is weight loss if you lose all of your muscle and can no longer enjoy your life? Doctors know very little about the central nervous system whether they will admit it or not. You may just have compressed nerves somewhere. Good luck and keep fighting and looking for answers.

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I had a pain stimulator put in my back to hopefully cut down on my neuropathy pain in my feet, but the doctor took it out because it wasn't doing any good!

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@sand7263

My feet hurt all the time, except when I’m asleep. My doctor has never indicated that I have diabetes. But I think I might have some kind of neuropathy. My feet feel like I have a tight glove on them and burn and sting. I do have a lot of broken blood vessels in my feet and I’m currently on a blood thinner for AFib. Recently had a watchman implant about one year ago. Want to get off of the blood thinner. I’m wondering if there’s something in going naturopathic that I could take that could possibly help my feet.
I will appreciate any suggestions.

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Hello @sand7263, Welcome to Connect. You mentioned that your feet feel like you have a tight glove on them along with the burning and stinging and a lot of broken blood vessels in your feet. Mayo Clinic has some information on conditions that may be similar.
-- Vasculitis: https://www.mayoclinic.org/diseases-conditions/vasculitis/symptoms-causes/syc-20363435
-- What is chronic venous insufficiency?: https://mcpress.mayoclinic.org/living-well/what-is-chronic-venous-insufficiency/

Have you discussed the broken blood vessels in your feet and your other symptoms with your doctor or vascular specialist?

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Hello,

I fast daily for at least 13 hours, I fast once a week for one night, one day and one night on coconut water only, I do physical activity, yoga, jogging, biking, swimming, I take magnesium, fish oil and D3. The symptoms are getting worse with time, but the progress is slow. Tried Gabapentin for a short period - it worked for pain. I tried a lot of things (visited neurology professors, Gamunex-C, plasmapheresis, laser, various supplements etc. etc.), the pain relief was the best with magnet acupuncture. God bless.

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@kdehaven

Has anyone tried the Qutenza wrap for foot neuropathy? The active ingredient is capsaicin. I tried an off the shelf rub containing 0.1% capsaicin and it burned so bad, I almost went to the ER and spent 3-4 hours feet soaking in cold water. Qutenza has 8% capsaicin but pain doctor swears it won’t hurt. $1000 for one treatment. Not sure any insurances cover it. Doc says she has seen patients lose all neuropathy pain and lasts 3-4 months. I told her to have a tub of cold water ready in case I’m one of those 1 in 100 who have a reaction. I’ll let you know.

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I had the same reaction to the capsaicin cream. Terrible experience!

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