My husband has intrahepatic cholangiocarcinoma. He was diagnosed last December. We chose to go to Mayo because of their reputation and my husband has medicare which is co ering a lot of the procedures. I understand if our insurance wont cover if you go to Mayo but maybe you can contact mayo and see if they can help or direct you. The surgeon we were working with is one of the best in his field so if there is anyway you can swing Mayo, I would try. It may be worth a call to them. We are very happy with the help we have received at Mayo. Good luck and prayers to you and your husband.