Connect
← Return to Cabozantinib Response: Initial Shrinkage, Now Stable – Is This Normal?
Discussion
Cabozantinib Response: Initial Shrinkage, Now Stable – Is This Normal?
Kidney Cancer | Last Active: Jul 27 1:47pm | Replies (3)Comment receiving replies
@rivhanwinardi It's not unusual for some patients to have good first response to a medication, as our body gets introduced to it. And then as the next round comes along, our body might try to mount a defense, and show less response. Has her medical team considered changing up the dosage or treatment?
You ask about kidney cancer specialists in the U.S.
Mayo Clinic - https://mayocl.in/1mtmR63
UCLA Health [Los Angeles, CA]
MD Anderson Cancer Center [Houston, TX]
Memorial Sloan Kettering [New York, NY]
This gives you a wide geographic area to choose from. Would you consider contacting one of these centers?
Ginger
Replies to "@rivhanwinardi It's not unusual for some patients to have good first response to a medication, as..."
Connect
Last time, my doctor suggested adding immunotherapy with Nivolumab. However, since all the nodules are still small—under 1 cm—my doctor prefers to wait and monitor them with the next follow-up CT scan before making any changes. So for now, She will continue with Cabozantinib 40 mg as her current treatment.
I previously reached out to Mayo Clinic, but they advised me to continue treatment with our current doctor in Singapore. Do you happen to have a way or a channel to connect with Mayo Clinic? I would like to seek a second opinion from the oncologists who is expert in metastasis kidney cancer stage 4.