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My pain progressed the same way except I didn't have any Prednisone to take like I usually did for pain. First, one shoulder ached and all day long I carried one arm with the other arm. I felt like I needed a sling for my bad arm. The next day both shoulders ached and I decided two slings wasn't practical and I couldn't put a sling on anyway. I needed help getting out of a chair and wiping was impossible. After about a week I couldn't get out of bed and get dressed without a lot of help.

My only doctor at the time was my ophthalmologist who always prescribed Prednisone for uveitis. I didn't think I needed any other kind of doctor so I listed my ophthalmologist as my primary care doctor. I couldn't call that doctor because I didn't have uveitis. I was angry with myself because I had discarded my entire stash of Prednisone about 2 weeks prior to all of this. I simply decided that I wasn't going to take Prednisone anymore

My wife hated that I took so much Prednisone before PMR was diagnosed. She made an appointment for me to see her primary care doctor without telling me. I wasn't too happy but she was going with me to the appointment so I wouldn't leave out any details.

All I said was that I needed prednisone but that didn't go over well with my wife's primary care doctor. My wife told her the details and they agreed that I needed a rheumatologist. As you have said in the past ... I was busted when I confessed to self medicating with prednisone for years.

I blamed the whole ordeal on not having Prednisone to take. I felt vindicated when the rheumatologist said I would need Prednisone for a year or two. I didn't need to hoard Prednisone anymore but I had no idea what PMR was. I had significantly elevated inflammation markers so at least I didn't have to contend with convincing someone I was in some serious pain.

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Replies to "My pain progressed the same way except I didn't have any Prednisone to take like I..."

Yes your pain sounds debilitating and I wonder if that explains why your inflammatory labs were elevated. Higher pain or more widespread pain might cause increase inflammatory lab values? How long ago was your diagnosis? Some people say that aGP can diagnose and manage PMR and others say it is best to see rheumatologist. I think having a rheumatology consult makes sense for me, and I know it will take a while to be seen. Thank you