What's next after SiNETS?
After 2 years of searching. CT scans, PET scans, all negative. Finally , the very last test, I would have been cleared. After a enteroscopy CT of my small intestine, there it was. 9mm NETS. I've been waiting for an oncology surgeon to call, but no call yet.
What's next? Surgery?
Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
I think I understand what you are saying. I simply don't believe a person that has had a NETs tumor removed is ever truly cancer free. It's that simple. Might live to be a hundred, but there are Neuroendocrine cancer cells there still. Millions of cancer cells in the body and I don't believe a surgery can get em all. I have a monthly Lanreotide injection and PET scan every six months because of it.