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Husband recently diagnosed with Cholangiocarcinoma and had no symptoms
Liver Cancer | Last Active: Sep 5 11:54am | Replies (79)Comment receiving replies
My husband is 56. His only symptom was extreme fatigue. He thought he was having an unusually hard time recovering from a cold. He also had some itchy skin, which prompted his doctor to test liver enzymes, which were high. Fast forward...7.2 cm lesion on his liver, plus multiple other spots on his liver. Source is bile duct. We are 19 days since diagnosis. He has had 2 stents placed in that duct (first one blocked pretty quickly), and his first round of chemo (only 2 of 3 meds given due to high bilirubin and alk phosphate). I feel so lost. This has all happened so fast. I want to run to the "right" place...and I am not sure where that is. We are currently at Methodist in St Louis Park, MN. I have requested a 2nd opinion from Mayo...but I am pretty confident my insurance will not pay for it. Mayo is not in any level of coverage for us.
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My husband has intrahepatic cholangiocarcinoma. He was diagnosed last December. We chose to go to Mayo because of their reputation and my husband has medicare which is co ering a lot of the procedures. I understand if our insurance wont cover if you go to Mayo but maybe you can contact mayo and see if they can help or direct you. The surgeon we were working with is one of the best in his field so if there is anyway you can swing Mayo, I would try. It may be worth a call to them. We are very happy with the help we have received at Mayo. Good luck and prayers to you and your husband.