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DiscussionGiant Cell Arteritis Diagnosis
Polymyalgia Rheumatica (PMR) | Last Active: Aug 3, 2025 | Replies (98)Comment receiving replies
Replies to "Mike, not only does it increase cardio risk but it has some really nasty side effects...."
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Thanks ... I have done a couple of bone scans. My first one was at the age of 52 and newly diagnosed with PMR. I was the only male in the waiting room so I was somewhat embarrassed. It reminded me of when I was 40 and having cataract surgery because of prednisone.
My DEXA scan was called "normal" for most areas except for my lumbar spine. I thought my lumbar spine T-score of +5 was exceptional until an MRI was done that showed too much bone. The spine surgeon said that much bone wasn't good.
I'm not sure what caused it but after my knee replacements, I developed bone in places where it shouldn't exist. Heterotopic ossification (HO) is a condition where bone forms in soft tissues like muscles, tendons, or other connective tissues where it normally shouldn't exist. Heterotopic ossification is called a healing process gone awry or an aberrant healing process.
Normally, the body's response to injury or trauma involves a carefully orchestrated series of events leading to tissue repair and regeneration. However, in HO, this process deviates from its normal course, resulting in the inappropriate formation of bone outside the skeletal system. Inflammation is thought to be the cause.
I also have Diffuse Idiopathic Skeletal Hyperostosis (DISH): This condition involves widespread calcification of ligaments and tendons, particularly in the spine. DISH can cause spinal stiffness and may elevate measurements on DEXA scans.
My entire immune system is messed up.