Deciding if I should do bilateral or double mastectomy??

Posted by cmshyf @cmshyf, Jun 25, 2023

I was just diagnosed w/DCIS & IDC in my right breast. Unfortunately the masses are so large that lumpectomy is out of the question. I was given an option to do a bilateral mastectomy with reconstruction or a complete mastectomy on both with reconstruction. How did you come to a decision on which to do? Was it because of symmetry, test results or personal preference? I’m so torn right now as most of my friends say do both. I do know it comes down to me but here I am…

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prarysky | @prarysky | 1 day ago

Correction I meant to say "grade 3" and not "stage 3"! They are very different!

cmshyf | @cmshyf | 1 day ago

Hi Everyone
Just a quick update 2 years later…I did end up having a double mastectomy and 14 lymph nodes taken out. I had the diep flap surgery one year after the mastectomy. I’m currently Stage 4 with metastatic breast cancer. I’m doing good and currently getting faslodex injections once a month to keep the lesions on my vertebrae stable. I’m not on any other medications only supplements. Staying positive throughout this process has been key. 😊

ppeg | @ppeg | 15 hours ago

In reply to @dnice "I have 1cm DCIS (ER+) in left breast, right breast “shows” clear in MRI and biopsy...." + (show)

I had this exact diagnosis, except I was level 3. It was my doctors who encouraged me to have the double, and it was I who thought that was so extreme. What finally swayed me was 1.) I wouldn't have to have radiation or any further treatment 2.) You get the best cosmetic outcome if you have the double. I was able to have the reconstruction at the same time as the mastectomies. I am 78yrs. old & decided that I want to look my best for as long as possible. I sailed through the surgery & recovery, & I know I made the right decision for me.
I did not allow them to perform the sentinel node biopsy. I am in perfect health, have no family history of cancer, and didn't want a sore arm to interfere with golf & tennis. After I made the request, the doctor told me that in my case, there was a very low possibility of finding anything. Good decision! I am clear. I wish you peace & luck in your decision.

moloney1231 | @moloney1231 | 11 hours ago

In reply to @dnice "I have 1cm DCIS (ER+) in left breast, right breast “shows” clear in MRI and biopsy...." + (show)

I had stage 1 initially and did a lumpectomy/radiation. It came back 12 yrs later. Still stage 1. Decided that I would take them both off this time around. Wish I would have taken them off the first time. Could have skipped radiation and a 2nd surgery. But it is personal. There is no right answer.