I so hope you go to Mayo for a consultation & treatment! All NETs patients need to make sure they’re seeing a NETS Oncologist/Surgeon. “Regular” doctors do not have the expertise needed to treat NETS, learned this the hard way. You definitely have to be your own advocate, never give up on pushing forward for treatment especially if you’re symptomatic. I had multiple CT scans x 2 years & nothing showed up…2 years later I had a PET scan & my NETS had metastasized everywhere. Good luck to you!