Ethambutol - side effects

1 capsule to 32 ounces of any 100% just juice, with no prerogative in it. My next jar will be tart cherry...same brand Knudsons because I wanted it in a glass jar, not plastic. That's all my small-town grocery store had. I was going to do tart cherry first but then decided to do the pineapple. The main thing is buy juice without preservatives. Dr Davis says ingredient from concentrate will work too. He said using juice with the cloudy stuff if ok ...it added more fiber and he likes that. I can't remember the word for the cloudy stuff at the bottom.

I will try but if I dont make sense go to YouTube and search William Davis, M.D. and he has a slew of videos where he shows how to make the juice probiotic and all the fermented "super togurts".
Here's what I did and had my first serving this morning.
32 ounce Knudsons 100% pineapple juice without preservatives in glass jar. Swiss the jar open and remove lid and put the contents of one Florastor saccharomyces boulardii capsule into juice. Put lid back on very very gently spend jar. Place in warm spot anywhere in your home where its body temperature (98.6F). Loosen lid of jar ...it can blow up if you dont. If you have a room or area that warm, let it sit for at least 48 hours but be sure to loosen the lid several times in the 48 hours tio let the bubbles of gas release. You can see it bubbling. Don't move or wiggle the jar much. I did and froth spewed out the top! You taste at 24 hr mark and if it isn't still sweet you are good to go...put it in the fridge with the cap on loosely. Its ready to use. If it still tastes too sweet let it sit on the counter another 12 hrs and taste again The S. boulardii culture eats all the sugar as it is fermenting. My kitchen doesn't get above 74 degrees with a heatwave going on outside so I wrapped my jar with a thick towel that I heated up in the clothes dryer and with just the very top of the lid showing. Worked great. Pineapple juice..even just 100% juice no sugar added is way sweeter than other juices and there is no detectable sweet taste in my result and it is super bubbly. Its good. Start with only 1/4 cup at first once or twice a day. The s.boulardii doesn't take up residence in your gut but it has been shown to protect your gut when you have to take antibiotics. It is my opinion that it is worth a try, at least for me since I have had problems with digestive tract since my 30s...and I am almost 81. Before 2 months ago, I had uncontrollable diarrhea at least once a week until I started making the Super Yogurt which by Fda standards cannot be called yogurt because they say "togurt" must have the standard cultures you find in supermarket yogurts. L. reuteri fermented dairy has changed my life. I haven't had diarrhea in 2 months! The l.reuteri fermented dairy has to be kept at 99 F because temp much higher than 103 will kill the culture. Dr Davis and hundreds if not thousands of content creators on YTUBE has plenty videos on how to make it. I bought a yogurt maker. I also have a yogurt setting on my instant pot but I couldn't keep the temp low enough so I just use the instant pot for regular yogurt using a small container of supermarket bought plain yogurt as the culture. Sorry this is so long.

Thank you so much. I am going through accepting it right now. I am with doctors at MUSC in Charleston - the MAC group and they are very positive about the 2-med approach. I know we are all different in how we react, but it is hopeful to hear that you are feeling fine. All the best to you!

Lulu thank you for taking the time. I suppose one could just take the S Boulardi capsule but the fermented juice sounds better. Last time I tried a capsule of S Boulardi it caused my heart to race in the PM. But I want to try the juice idea at 1/4 cup at a time. Your technique sounds good and very helpful to me so thanks again. Did you only have to warm the towel initially? I have also had GI issues since my 30's mostly but really all my life. It runs in my family. So it becomes a big issue if you also need to use antibiotics with BE and Pseudomonas or MAC in your case. The yogurt is more confusing to me. All the information online from Dr Davis seems to indicate the L reuteri is for weight loss but sounds like it helped stop diarrhea for you so that is promising. BUT Also making it sounds/looks complicated so I got discouraged because of that plus the idea of any more weight loss. I am bone thin already.

I go to the same clinic! I’m on Azyth and Eth too with a side of nebulizer and inhaler! I’m about 6months into treatment and finally starting to feel like myself again. But still having symptoms, just not as pronounced. The recommendation to get my eyes checked led to cataract surgeries though so I’m in the middle of that right now. What a journey it’s been so far. Small world though. Hope you are doing well.

If you take 1/4 cup a day at first, you get 16 servings out of that 32 ounces (if it doesn't spew out of the bottle 😁) and you've only used one capsule. Im a senior living on Social Security and have to live frugally as I am able. Dr Davis said you can definitely just take the capsules so my plan is to keep making the fermented juice to save money, keep some capsules always on hand and if I run out of juice before I can make more or dont feel like making more juice, I'll just take the capsule a few days till I'm able to make more juice. No, I didn't reheat the towel the first day, but reheated it the second morning when I got up. I like to experiment. It was 95 degrees here yesterday. I walked into my garage and it wasn't unbearably hot, so I placed a thermometer on top of my chest freezer and when I went back 2 hours later to check it the temperature read 88F. Im going to try my next batch out there. And you are so welcome. If you want to know more just let me know! As always, forgive typos...my daughter says she has learned to decipher my text messages finally.🤣

It is a small world! Are you in Charleston? I am in Greenville. I had gone out to National Jewish Health and then they referred me to MUSC when I asked for a recommendation. I just started the Ethambutol a few days ago after doing the Azythro alone for a week. So far, no bad symptoms but it is early in my starting. I am very tired. I am not sure if that is a side effect, but I have noticed it lately. What side effects have you experienced?
I'm really glad to connect on this as it really does help talking to others that are experiencing the same. It's a hard disease to explain to others who don't know about it. So glad to hear that you are starting to feel like yourself. It gives me hope!