← Return to Newly diagnosed with invasive pleomorphic lobular cancer

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Profile picture for maggiejinx @maggiejinx

Thank you so very much for sharing your story with me!! It really gives me hope and is so helpful to have some knowledge of what my treatment might be like. It sounds like your cancer is (was) practically identical to mine. I am not in menopause yet but I haven’t had a period since April so I’m making progress toward that. Did they ever suggest you have a mastectomy on the other side? I am hoping to avoid that only because the one side was so painful. How any rounds of chemo did you have? Was it through an IV? I am so happy for you that the cancer is gone and I love the lifestyle changes you have adopted. I definitely have goals of things that I would like to change and I feel like in the end I’ll be healthier than before. I feel like this is a wake up call to make a fresh start in a lot of ways. Please keep in touch and thank you so much again for taking the time to reply to me!! I wish you all the best!!

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Replies to "Thank you so very much for sharing your story with me!! It really gives me hope..."

Yes, the cancer that I had sounds very similar to yours, which is why your post caught my eye. I haven't met anyone else with the pleomorphic type. I wasn't in menopause either, but the treatment has changed that. My grade 3 tumor, combined with a higher onco score, is why I benefited from chemo (which was 4 rounds). I had a port installed because my veins are small. It made the whole ordeal so much easier. The first surgeon I went to recommended a double mastectomy, and the second one (who ended up performing the surgery) did not because my genetic testing came back clean. She reasoned that the other side was healthy, and it is best not to have a major surgery on a healthy organ. It doubles the chances of complications, and it wouldn't change my survival odds. Plus, I feel like I am being closely monitored because I get an MRI on both sides every year, with a mammogram in between. That wouldn't be happening if I had a double done. I wish you all the best, and I would be interested to hear if your oncologist recommends the same treatment that I have had.