Hi
My Dad had UPS with lung mets - he’s been on Trabectadin for over 2 years which has been great to be honest, hardly any side effects and it has held back any growth/spread the lung nodules were down to 2/3mm. Recent CT has shown growth of 2mm in just a few, no new growth of nodules and growth nowhere else in the body. Consultant has said the amount of growth would not be classed as progression at this stage and wants to wait for the next CT scan (after 2 more treatments). As Dad had Trabectadin as first line treatment (I wanted him to maintain his QOL if there was no chemo that would cure him), so just wondered has anybody tried anything else for sarcoma lung mets - Erubulin, Pembrolizumab or Pazopanib? I want to be forearmed before we make the decision as I don’t really want him on doxi/ifosamide/gem due to its toxicity without any real positive outcome - many thanks