I had a somewhat similar situation when I was diagnosed with my pancreatic neuroendocrine tumor. In October of 2024, I was sent to the hospital due to bilateral pulmonary embolisms, a pulmonary infarction, and numerous blood clots in both legs and both lungs. My hematologist sent me to Mayo, where they did an endoscopy to try and find what might be causing so many blood clots. After the endoscopy, the doctor doing the procedure came into my room and said everything looked good except they found a small tumor on my pancreas. He assumed it was neuroendocrine and told me there was nothing to worry about because they are very rarely cancerous on the pancreas. I, too, was one of the "lucky" 2% where it was malignant. The pancreatic doctor at Mayo and my hematologist both were quite surprised but assured me it was small and NET's are generally slow growing. I was monitored for two months following the endoscopy by using the CA 19-9 blood test. When that went down to the "safe" range, the monitoring was done. I also asked about removing the tumor but the answer from both doctors was no. The tumor is on the tail of my pancreas and they said removing it would be worse than just routine monitoring. I am headed to Rochester the end of this month for a six-month check using endoscopy and also a CT scan of my abdomen (due to bloating). My brother died from pancreatic cancer 5 years ago and the memory of his suffering lives in my mind. I understand your fear in not knowing what the tumor might be doing and worrying about the growth rate taking a sudden increase. Unfortunately, in my case at least, that is all that's being done. I feel like I am sitting on a powder keg just waiting for it to blast off and no one is doing anything about it. So frustrating but there only so much, we as the patient can push. My doctor at Rochester works only with pancreatic cancer and particularly with PNET, so I don't think there would be any reason to try find a different doctor. I truly hope you can get your issues resolved, this is no fun! (BTW, I am also 73.) Good luck in your journey!