Thank you for sharing these parts of your journeys. I have a similar diagnosis to your original (@meleve and @helloitsme) (grade 1 NET removed during routine colonoscopy). The doctor who performed the colonoscopy sought consultation from a local oncologist once the pathology report showed it was a NET with margins involved. That oncologist said I could either have a repeat colonoscopy in 6 months or have the margins removed sooner if I'd like. Everyone locally seems to want to reassure me that it's a best-case scenario (grade 1, very small, "relatively benign"), but I am seeking a consultation from Mayo Clinic in Rochester (I'm in a rural area and I don't get the impression that the oncologist or the surgeon who did the colonoscopy procedure have experience with NETs). My concern is that, while the tumor that they found was relatively benign (not likely to metastasize), I don't know if they can tell if it's the primary site or if this is a metastasis from *another* site.

The plan for my consultation seems to include some blood work and a CT, I'm curious why no PET scan would be ordered. I've been chalking up other symptoms for the past year or so to stress (kid stuff) or peri-menopause (I'm 47), but now I'm a bit worried that I've got NETs elsewhere that are causing these symptoms, and I'm nervous that something will be missed without a PET scan. I don't want to pretend that I know nearly as much as a doctor or sound pushy, so I'm wondering how others might approach this, what to ask, or what others have seen. Thanks!