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Anyone have experience with lenvatinib (Lenvima)?
Kidney Cancer | Last Active: Sep 15, 2025 | Replies (22)Comment receiving replies
I’ve been on Lenvima for 7 months, first at 24 mg for two months, now at 12. My thyroid cancer, after 3 surgeries and RAI metastasized to my lung. The 24 mg nearly killed me: BP was out of control, no appetite, joint pain, fatigue, etc. A different oncologist took me off of it after I ended up in the hospital for 3 days. 12 mg is tolerable and I had a clean PET scan in mid-May, no growth, no new nodules. Does anyone survive this metastasis? Or is it a death sentence.
Replies to "I’ve been on Lenvima for 7 months, first at 24 mg for two months, now at..."
I also had other terrible side effects with lenvima, along with hypothyroidism: the very high blood pressure, joint pain (that I still have 2yrs later, fatigue. I will never take that again. I'd rather Any other treatment.
I had kidney cancer first, that metastisized to a cyst in my maxillary bone, which was thankfully removed. Now, I'm praying that a cyst on my remaining kidney is not cancer. This kidney cancer spreads like wildfire it seems. But we WILL ALL beat it!!!! God Bless to you!
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So glad to hear that your PET scan came back clear! I think that could be a sign of complete remission. If you don’t mind me asking, which oncologist is currently treating you? Are you on Lenvima 12mg alone, or is it combined with any other therapy?