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Headache and Migraine Group: Let’s connect

Headache & Migraine | Last Active: Jul 22 3:31pm | Replies (104)

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Profile picture for babmuse @babmuse

I am a 76 year old woman. About 6 years ago (AFTER I retired as a writer), I started experiencing an irritated scalp and tight neck, which gradually got worse. Docs, including a neurologist, wanted me to go on gabapentin immediately, but I wanted to give other solutions a try. I did physical therapy with several different practitioners, but no luck and the pain was getting more constant and waking me up at night. I finally went to a pain specialist who immediately said it was occipital neuralgia. Happy to have a diagnosis, but I seem to be trapped in a 3 month cycle with steroid injections in my neck. I have relief for about 6 weeks, but I can’t have more steroids until 3 months, so about six weeks of pain, up to a 10 at intervals. Treated with Tylenol and ibuprofen, every 3 to 5 hours. I recently stopped the ibuprofen, but my body is on a rebound schedule so I have to take the Tylenol every 5 hours now. I am very fatigued and this is affecting my social and emotional life and energy level. I may try the gabapentin next. Has anyone had any good or bad experiences with a low dose of gaba? Any other suggestions? Sorry for this long post.

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Replies to "I am a 76 year old woman. About 6 years ago (AFTER I retired as a..."

Hi, @babmuse, and welcome to Mayo Clinic Connect. I am glad to hear you have a diagnosis, too. Sorry to hear about this 3-month cycle you are having to experience, however.

I took gabapentin personally, but it was for postherpetic neuralgia after having shingles, to deal with lingering pain/tingling after the condition had run its course. I recognize that some individuals report side effects from gabapentin, but I experienced none. It helped me with my pain. My doctor had me trial off of it after about 7 weeks of treatment, and fortunately, my pain and tingling were then gone.

There are numerous discussions on Mayo Clinic Connect in different support groups about gabapentin. Here are a couple that might have some useful information for you, including one from the Neuropathy support group and one from the Chronic Pain support group:

- Has Gabapentin helped anyone out there? https://connect.mayoclinic.org/discussion/has-gabapentin-helped-anyone-out-there/

- Is anyone on Gabapentin? https://connect.mayoclinic.org/discussion/is-anyone-on-gabapentin/