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I am 83 years old with a PSA of 6.5. Will have a prostate biopsy soon.
Prostate Cancer | Last Active: Jul 22 1:23pm | Replies (65)Comment receiving replies
Hello, and thanks for your message.
I turned 91 in February and had stopped taking Lupon D injections in August, 2024. They were given every 3 months and I took 4 of them.
My PSA was .01 when I stopped and it has since gone up to 1.6 and 2.5 this month. Testosterone level was 10, and it has gone up to 119 and now 220.
I will be seeing my urologist on July 30, and it remains to be seen what he will suggest considering my age. He told me nothing about the value of exercise or how to deal with shrinkage when I first started treatment. Joining this group as well as a local support group has been a Godsend.
It has been a slow recovery from the ADT, as although the hot flashes stopped quickly and libido has returned, I am still lacking in energy, and experience cramping and soreness in both legs. Nevertheless, I keep going and hoping for the best. I wish likewise for you!
Mick
Replies to "Hello, and thanks for your message. I turned 91 in February and had stopped taking Lupon..."
You had a quick recovery of Testosterone but still low on energy? What was your Testosterone level before the treatment. Mine was 328 at age 88.
Is your urologist also an oncologist? As jefmac on this forum says we should see a GU Oncologist for treatment with drugs.
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A drug like Nubeqa (Darolutamide) might be what would work.
I’m 77 and I’ve been on it for two years and it’s the first drug in 15 years that has kept my PSA undetectable for 20 months. Previously, I got one month undetectable. I know a lot of people that have been on it as their only drug. It has very few side effects for most people. It works well, even if you have a testosterone level. I quit ADT For eight months while I was on it and My PSA stayed undetectable. I know a lot of other people all ages that are using it as their only drug. You could come to an advanced prostate cancer weekly meeting at Ancan.org And they can give you a lot of cases where it could work for you too.
There’s four non ADT drugs that you can choose from. Nubeqa is much better in side effects than the other 3.
Ask your doctor about it.