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What's next after SiNETS?

Neuroendocrine Tumors (NETs) | Last Active: Jul 19 4:44pm | Replies (31)

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The difference would be that a person with NETs has cancer cells diving or trying to divide in their body. Can a person live a LONG time with Nets? Absolutely. I've had it a long time myself. I suspect more than 10 years as I was misdiagnosed for many years as having AVM issues. What I have though, is a NETs mass in my mesentery.

On PET scans: Having a clear PET scan simply means only that. It does not mean you are cancer free. I've had many of these now with Gallium and Copper isotopes. I continue to be a student of having cancer and how PET, Cat scans work and detect cancer. It's an interesting technology.

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Replies to "The difference would be that a person with NETs has cancer cells diving or trying to..."

Hello, how are you? Clearly, but a healthy person could also have some type of tumor they don't know about. A person who has had a NET removed, without lymph node involvement or metastasis, may or may not experience a recurrence. As long as all the test results are positive, if the patient isn't receiving other treatment, they are treated as a healthy person; nothing more than follow-up tests are performed.

Because if we think we might have something, but the equipment doesn't detect it, that would happen to everyone who is good at routine studies. Do you understand what I'm trying to say?