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Hormone Treatment Experience

Prostate Cancer | Last Active: Jul 22 4:03pm | Replies (51)

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I took just 4 months of Orgovyx that completed about 1.5 years ago. I eat well, exercise daily and play pickleball and golf. After one year, my Testosterone did not fully recover and my team agreed that I could take supplements. My fertility RO prescribed TGel and Cialis. My T returned to normal and I'm in the process of weaning off both drugs. My PSA was stable during this time.

Compared to many others, 4 months is 'ADT light'. Sadly, I still have not recovered from the main 4 side effects: Belly Fat (gained 10 lbs. eating a healthy Mediterranean diet and drinking less); Hot Flashes: definitely still happening; Energy/Strength: struggle to run (5-10K) distances as I could before ADT; ED: about 80% of normal.

I'm trying to understand how these side effects could still be so active when I clearly had a 'light' version of ADT. I'm meeting one of my Dr. team on Monday and, if I don't get a suitable reply, I'll check with some of my other doctors. The literature on this topic is all over the map, hence, not useful. (Disclaimer: I'm grateful not to need more intense treatments at this time...just want to understand what's going on and maximize QOL like we all do).

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Replies to "I took just 4 months of Orgovyx that completed about 1.5 years ago. I eat well,..."

I was on ADT (Lupron, Abiraterone) for 3 years. I’ve been off for 10 months. I still have all of the side effects except high blood pressure and high blood sugar. I fixed the ED problem with IPP surgery and my testosterone is SLOWLY returning. It is now 67. Since I did not lose my libido while on ADT, my wife and I continued sexual relations without penetration the whole time ( we called it lesbian sex). We are now able to have the real thing. Since I don’t know whether I will have to go back on ADT, I am doing my best to learn how to live with the side effects. It is not easy, but I feel that I am making progress.