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← Return to Encephalomalacia, anyone?
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Hello.
Hope everyone is doing well.
In 2017, I had a craniotomy to remove a tumor in my left middle cranial fossa that measured slightly more than an inch. Encephalomalacia first appeared in my follow-up MRI report two years later, but my neuro never mentioned it or attempted to discuss it during office visit. Another MRI in 2021 revealed "mild encephalomalacia in the anterior left temporal lobe at the resection site." Neuro made no mention of it.
On my third follow-up MRI scan last year, the report revealed again that I have "mild encephalomalacia...Minimal gliosis involves the lower left temporal lobe at the pterion."
The question is, should I be concerned? Since he hasn't mentioned it to me or brought it up at all, Neuro doesn't seem concerned about it.
Thanks for reading.
Best,
Replies to "Hello. Hope everyone is doing well. In 2017, I had a craniotomy to remove a tumor..."
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Hi there. I was diagnosed with chronic encephamalacia due to brain surgery and radiation therapy. The doctors told me that it was just scarring for over 20 years yet I knew my symptoms were progressing. I finally read my MRI scans a couple of years ago and saw the word chronic so I knew it was something serious. Then I uploaded my scans to ChatGPT and it gave me an awesome way to slow down the progression. It’s a complete diet change consisting of all anti-inflammatory foods (blueberries, turmeric with black pepper, ginger, etc…). So it generated a recipe for a smoothie I drink daily. And at night I drink pure cacao (great for stem cells) mixed with Chia seeds and almond milk which has helped tremendously. Since yours is mild, I’d start with these neuroprotective foods right away. Mine has become chronic so I’m currently trying to get into a clinical trial somewhere. Anyhow, I hope this info helps and wish you well