Hesitant to begin drug treatment for my osteoporosis
Hello! My first post here as a new member. I am an active 69 year old female who was diagnosed many years ago with osteopenia but now have osteoporosis. When diagnosed with osteopenia I gave several drugs a try. I had side effects from all the oral choices I took, and when giving myself Forteo shots, broke out in hives all over my body. After that, I decided I would take my chances and go the natural route to keep my bones healthy with diet, consistent exercise and Calcium/Vitamin supplements. Fast forward to present time my last bone density scan was worrisome, (a -4,4 T score in my spine). An endocrinologist strongly suggested treatment, (shots or infusions), but I still fear side effects. I am currently trying to educate and empower myself by researching all options. I am already a bit overwhelmed with so many differing opinions. Drugs or no drugs?! The possible serious side effects of drug treatment still frighten me. Has anyone here diagnosed with more advanced osteoporosis, remained fracture free? Am I at such a high risk that I’m doomed without drug treatment? Thank you in advance for any advice, experiences, etc.
Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
What exercises do you do for your hip?
I do a lot of squats. Bridges with some weights on my stomach .
My femoral Neck is my lowest bone density of -2.2
There is a machine at the gym where you sit with pads on the outsides of your knees, and you push outwards.
At home, you can do clamshells with resistance bands.
I have a link for treatment guidelines compiled by NOF (National Osteoporosis Foundation), see slide page#18:
https://cme.nof.org/sites/default/files/Osteoporosis%20Guidelines%20and%20Clinical%20Practice-%20Singer.pdf
There are other guidelines available, which are generally similar, with some variation.
Each endocrinologist may recommend different pharmaceutical treatments based on his/her own clinical experience and judgement. This often leaves us patients with the decision of whether to follow our doctor's recommendation or to wait and consider other options.
Your calculated FRAX falls roughly in the middle range. For comparison, my FRAX was better than yours but my Lspine Tscore was lower at -3.4, so I decided to start Forteo shortly after diagnosis.
Given your endo's initial proposal, personally I'd choose Forteo (or Tymlos) in a heartbeat. You've probably read that sequencing matters (shown in the link). The timing of when to begin the pharmaceuticals also matter, and that decision is very personal.
I'm curious what led your endo to choose Fosamax. Would you mind sharing your baseline uNTX if you have it, and your lab's reference range for uNTX?
Based on the info I received from my two obgyns at different hospital systems, transdermal estradiol patch and micronized progesterone (both bioidentical) are generally considered safer than oral estrogen and synthetic progestins. This combination is favored by many doctors so it's worth exploring with your physician.
If Forteo (or Tymlos) ends up being your treatment choice, it's also worth discussing with your endo whether to use HRT concurrently.
This is both helpful and honestly, a bit overwhelming. These medications often have such strong and varied side effects, plus some have been around less than 10 years. I hadn't heard anything about Vitamin K-2 so I'll have to look into that. I stopped taking Tymlos because of the side effects. I exercise regularly and have started with small weights. I wish I had someone who I could go to (in person or virtually) who specializes in osteoporosis. After reading your post, I think you know more than the doctor I went to!
Gosh, I have been taking drugs for OP for 20 years. I got it from having a tumor on one of my Parathyroid Glands.
I’ve never had any issues with any kind of medication.
Nor have I Susan.
Thank you for your most informative response! You certainly have done your research!. I just don’t like the way doctors push drugs on a person…that’s what medical doctors do.
I live in a very remote area in northern Minnesota. We have a hospital, but it’s more of a pit stop if you have a major medical issue. For further testing we usually get referred to a health center in Minnesota 100 miles away
or North Dakota twice the number of miles. There are communication gaps between the three. Thus, my Dexa scan report fell somewhere in the gaps. I have reached out to no avail.
Anyway, I agree with everything you have said. I also have osteoarthritis in my spine and other degenerative issues. I know I have to exercise but I have been slack due to chronic pain. I have promised myself to work on this. Keep up the good work.
I take calcium, vitamins D and K.
If I may ask what drugs do you take?
Fosomax, forteo, evenity and now, on my 2nd injection of Prolia. I have had no noticeable side effects with any. About a year ago i began bhrt..... estradiol and testosterone pellet, progesterone and estradiol vaginal cream. I recently stopped the pellet and replaced it with compounded testosterone cream and estradiol patches. I may go back to the pellet though. I am 77.