Hi Ray and John, Thank you for the welcome. First, symptoms: orthostatic hypotension and postprandial hypotension, urinary problems, gastro problems, tremor, overheating and sweating, dry skin insomnia, Restless legs, anxiety, the bottom of my feet are tingly, and one hand falls asleep at night every night and I’m not lying on it. Weird, right? Actually, the reason I was tested with a Qsart test is I was convinced I had Multiple Systems Atrophy, and frankly, the IAN dx has not really made me convinced that I still don’t have MSA. I had a Syn-One skin biopsy that was normal and that is suppose to be a 95% confidence rate in the test which is for PD, MSA, Lewy Body Dementia. So here, I am still worrying about what has caused autonomic neuropathy!!!! MSA, perhaps? So tired of worrying. Thanks for all the info, guys, I’ll look at that link. And, Ray, way to accept, create a plan, and move on. John, what symptoms do you have with small fiber neuropathy? Do you know what caused it? Thanks again, oh and by the way I meant to type TYIA. Thank you in advance, how uncool am I? 😂
Hi @cctee, The neurologist that diagnosed me suspects it may be hereditary but they really don't know a cause. I'm wondering if it might be due to being tagged as pre-diabetic most of my life before I really knew what that meant and none of my primary care doctors that told me I was pre-diabetic told me about the metabolic syndrome which has a lot of ties to different neurological conditions. So I suspect that could be a cause and I've worked on changing my diet and lifestyle to lose the extra weight which has helped me with other conditions and may also be helping me slow down any progression of my neuropathy. My symptoms have always been numbness with some tingling but no pain that started in my toes. I do have similar issues with my hands but attribute that to carpal tunnel syndrome.
One site that has really helped me along with all of the discussions here on Connect is the Foundation for Peripheral Neuropathy. If you haven't seen it, it's a good place to start learning more about living with neuropathy - https://www.foundationforpn.org/living-well/.