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Idiopathic Autonomic Neuropathy

Neuropathy | Last Active: Jul 21 2:35pm | Replies (21)

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Profile picture for Ray Kemble @ray666

Welcome, @cctee!

When I was first diagnosed (in the summer of 2022), all I was told was "idiopathic perripheral neuropathy." My only symptom back then was poor balance. No pain. Since, I'm managed to refine my diagnosis to "chronic idiopathic axonal polyneuropathy," or CIAP. My only symptom is still poor balance, but still without pain.

You'll note that one word has carried over: "idiopathic." I was told at the outset that it was highly unlikely I'd ever know what caused my neuropathy. It took me a while to accept that, but today I do, and instead focus my attention on doing balance exercises and rebuilding lost core and leg strength, all to keep my already poor balancd from worsening.

Can you tell us something of the idiopathic autonomic symptoms your experiencing? It would help to know a bit more about your particular neuropathy,

Best wishes,
Ray (@ray666)

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Replies to "Welcome, @cctee! When I was first diagnosed (in the summer of 2022), all I was told..."

When I was first diagnosed the neurologist said that idiopathic meant the patient was pathetic and doctor was an idiot.