← Return to Carcinoid cancer: Want to meet others
DiscussionCarcinoid cancer: Want to meet others
Neuroendocrine Tumors (NETs) | Last Active: Aug 23 1:27pm | Replies (169)Comment receiving replies
Replies to "Did the same thing come back in 2024? How are you doing now? I go for..."
I forgot to include I’m doing fine, still do all activities I did before any of this started! Feel great, but I do get tired easily; it will be a year in November. Just had a follow up PET scan & I only have one small spot in lower colon that I’ve been referred for Lutathera treatment that I hope will zap it! You can do this & best advice is to stay happy & positive😊
I’m a grandma too, just turned 66! Ask any questions you want, I’m happy to answer them all. Please keep us posted on how your surgery goes, you will do great!
Yes, it came back with a vengeance, it had metastasized to peritoneal lining, liver, gallbladder, bladder, appendix, small bowel, large bowel, diaphragm muscle. NETS surgeon performed a cytoreductive/debulking surgery; huge & painful surgery that took about 3 months to recover from. Have been on Octreotide injections ever since.