Hi @blm1024
Welcome! Glad you’re in the other side of surgery.

I have typical lung carcinoids and DIPNECH. Very slow growing. Discovered in 2008. Too many to remove. Had largest 2.6 cm destroyed with ablation. CT scan surveillance all along. Still stage 1. Octreotide injections to control respiratory symptoms.

I talked to a lady from another NETs site who had a typical lung NETs tumor the size of a tennis ball removed along with one lobe at 70 years old. I last talked to her when she was 80. She just had CT scans for 10 years. No recurrence or metastasis. No breathing issues. Doing great.

Lung NETs is much less likely to spread than GI NETs. I hope you find this encouraging and you’re one and done. 😄