Fluoroquinolone toxicity

Just a comment regarding antibiotics in particular Avelox, Cipro and other related strong antibiotics. When taking these meds, try to be with someone in case you have an allergic reaction which is what happened to me when I was prescribed Avelox. Within 2 minutes I had a full blown out reaction. Could hardly breath. My wife carries a copy of my meds list and rushed me to a nearby urgent care and was given something to counter the drug. The doctor asked what I took and did not have time to get any info about me, it was an emergency. Our hospital is 11 miles away and was too far, could not wait for ambulance. A reaction may not happen the first time taking an antibiotic, it could happen afterwards. So, having someone nearby for a possible reaction to an antibiotic is essential. Ed

Good suggestion. Because I’m allergic to some meds and have a ton of allergies in general, whenever I take a new med I park right outside the emergency room (I guess you could do urgent care too) and I have a note already written out that “I’m having an allergic reaction to x” in case I’m unable to speak. As you know, you don’t have a minute to waste with a severe allergic reaction.

I'm so sorry...I'm 45 and going through hell too since finding out last week (my mum found an article) that I have Fluoroquinalone toxicity due to Ciprofloxacin, 3 day course. 20 months of hell so far, wasting away, can't eat properly so can only get a few calories in and having to force Huel down multiple times a day - anxiety...neurological, psychological, heart issues, breathing issues, now getting g exhausted and have pain in eyes, neck and knees and ankles - everything feels like exhaustion. I'm so sorry ...I really am...none of us deserve this...it's utterly heartbreaking. I have been going to doctors for 20 months and none of them have a clue - now that I've found the answer, I have an appointment booked for the 13th Feb. I'm absolutely livid - it is their job to find out about medication warnings! How dare they do this to us. I want to get as many people together in the UK and take Bayer to court. X😢🫶

I was prescribed cipro. I winded up getting adverse effects from it. One being fiber nueropathy. I am getting leg and arm pains. Now numbness. I get spasms from head to feet. I’m in excruciating pain and can’t function. Can anyone offer any advice?

Speaking from my own experience of levaquin toxicity, getting doctors and neurologists to even acknowledge the possibility is useless. I finally found an MD in Palmyra PA who is family practice and alternative medicine. He is very knowledgeable about the damage from floroquinolones. He diagnosed medication toxicity and Put me on a regimen of supplements. Nothing worked immediately but I have for the most part recovered after 3 years. I still get neuropathy flares and some shoulder pain here and there but compared to where I was I’ll take it. The first year was the hardest and scariest. I’d recommend finding an alternative medicine dr to advise on supplements, eat clean, and as odd as it sounds meditate every day for at least 10 minutes. The calming effect helps some of the physical stuff at least for me. Neuropathy and tinnitus mostly. I think time is the tincture with this. At the 1 year mark I felt that life as I had known it was over. But now 3 yrs post floroquinolone I’d say I’m 90% recovered. I still take a few supplements daily and watch what I eat but overall life is back to normal.

I am relatively new to this web site, on about two weeks, still working my way thru various subjects and this caught my attention. I was given a series of Cipro, Avelox, Augmentin over a period of several years due to diverticulitis and finally got that resolved. Noticed some numbness in toes, side of feet. I had been on Dilantin for 35 years, neuro doc figured that could be cause. Several years later, round 2010, ended up in hospital for 4 days due to serious sinus infection which was MRSA. Even today, no idea how I got that. Doctors gave me various antibiotics with no sucess, once I started to look like Homer Simpson, doc finally ended up giving me vancomycin which I believe is what they refer to as the last line of defense. The doc had no other choice. It obviously worked. I believe around 2013, FDA put out warning about vancomycin could possibly cause neuropathy. Hmmm. After the hospitalization, I did develop sensory neuropathy and later, motor neuropathy. My diagnosis by Mayo is idiopathic axonal sensorimotor PN. My balance is horrible. So, I have to scratch my head and wonder a little.
Could antibiotics cause all of this?? Sometimes sharing info can be helpful to many.
Ed

@njed About 20 years ago, I took 3 weeks of Cipro. On the first day of my treatment, I felt a jabbing feeling in my legs. I completed the 3 weeks of Cipro and developed severe tendonitis in my legs. I couldn't walk around the block. I did physical therapy that resolved the walking problem. I also had a 2 week spin on Levaquin in the same period of time. I also took Dilantin most of my life. I am thiamine deficient (due to the Dilantin). That is resolved, I think. I am also type one diabetic. I have no way to explain my way out of the possible neuropathy that I have. I feel the tendons in my feet. It feels like a sensation. My balance is really bad also. I am working on that through strengthening and balance work. I have developed osteoporosis which of course is blamed on Dilantin and Type one. Thiamine deficiency and Cipro cause a magnesium deficiency. I read that Magnesium can't get into the cell and that we should be taking Mg Glycinat. I am also taking NAD for mitoochondria(recently)