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What's next after SiNETS?

Neuroendocrine Tumors (NETs) | Last Active: Jul 19 4:44pm | Replies (31)

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Yes, thanks for you reply. They think they caught it early. But I am very symptomatic. Today is a particularly bad. I never rush into things. I've been at this 2 yrs, perhaps longer. I'm tired of guessing and wondering. I'm so relieved we finally found it, but you are right. Its not an easy decision. I know these tumors don't travel alone. My oncologist did say that there could be more, too small to see.
Still waiting by the phone for the call from surgeon. Best wishes to your husband

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Replies to "Yes, thanks for you reply. They think they caught it early. But I am very symptomatic...."

Each NETS case is unique; some have symptoms & some don’t. In my case surgery was necessary, every time I ate or drank something within an hour I would vomit. Surgeon ended up removing 22” of small bowel, lymph nodes & surrounding tissue, pathology confirmed NETS. Photo is attached.