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What's next after SiNETS?

Neuroendocrine Tumors (NETs) | Last Active: Jul 19 4:44pm | Replies (31)

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Profile picture for mimighosh @mimighosh

Hi
I agree with this "wait" approach as well. My husband was diagnosed last year with grade 1, stage 4 (liver metastasis). He is stable on once a month Lanreotide shot. We have tried to educate ourselves and seeked multiple opinions from NET specialists. NETs are very much a marathon not a sprint, and rushing to do surgery may not necessarily lead to the cure you are hoping for. It is not uncommon to have NETs be present in your body that are below detection levels, but can then grow slowly over years. Of course surgery may be a good option in your particular situation, especially if you are having symptoms.
Please seek multiple opinions before deciding.

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Replies to "Hi I agree with this "wait" approach as well. My husband was diagnosed last year with..."

That's right. I've had more than one surgeon tell me there is no cure for NETs. My current Oncologist even said that he does not use terms like "cured" "clear" or "cancer free". Remember, there are millions of these type cells in the body.