So sorry you are going through this. We really do have to advocate for ourselves, don't we? We are the only ones who know how we feel and how are bodies respond to drugs, etc. I hope and pray you can find some relief. I also have fibromyalgia and the pain is not the same, no matter what your rheumatologist says. Stay on top of that jaw pain because GCA is a relapsing disease. If it gets too bad, skip the rheumatologist and go to the ER. I will pray for you! Hugs!