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Has your doctor ever stopped your antibiotic therapy?
MAC & Bronchiectasis | Last Active: Aug 27 4:53pm | Replies (19)Comment receiving replies
I had to stop after a month because of very high level of liver enzymes. After a week blood work showed improvement and the antibiotics were introduced one at a time and my liver enzymes level was checked. As soon as rifabutin was reintroduced liver enzymes went out of the chart. It was stopped and clofazimine was added plus iv amikacin with once a week blood work. So yes to your question.
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I took myself off the antibiotics.
After repeatedly telling my ID Doctors something wasn’t right for three months I asked for an autoimmune check which came back positive ANA and a chromatin levels at 2.4 (0.2 normal) . The damage this has done to my connective tissues/Vision/Nerve Damage/Skin/Neurological and lots more is unbelievable that continues to progress to this day. My body will not absorb any nutrients and my muscles are literally dissolving. The irony is that 3years later one of my cavities has significantly reduced. I still have MAC but I fear that the adverse reaction to the Ciprofloxacin is going seal my fate.