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Hi Lori --
I saw that you were diagnosed with MGRS -- me, too! And that you live on Vancouver Island -- I lived in Bellingham, WA for about 40 years, but now live in France. I have family on Vancouver Island -- Duncan and Nanaimo. Beautiful. Are you finished with your MGRS treatment? Mine just started yesteday. Next step for me is to start dealing with with CKD.
Sheri

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Replies to "Hi Lori -- I saw that you were diagnosed with MGRS -- me, too! And that..."

Hi Sheri,
Nice to hear from you.!
I m just travelling back to the island after a long road trip east.
Yes, we were neighbours for awhile lol, I moved here 10 years ago from Alberta.
I am currently in my second year of remission, and by the looks of my numbers will make another year. woo hoo!
My treatment is quite common,
5 week cycles over a period of nine
months of Bortezomid, Cyclophosphamide and dexamethasone. Weekly injections and one pill, fifth week pill only.
I unfortunately had a psychotic reaction to the dex. and was hospitalized for 3 weeks whike they straightened everything out. My treatment then left out the dexamethasone.
Glad to hear that you have great care there, it makes a world of difference. It is a shock for sure to receive this diagnosis.