Hi grandma,
I really understand your feelings. I had methotrexate for a few months and have a few nodules in my hand and one in a lung. Tried Kevzara but allergic reaction with a rash and increased skin keratosis. Then went to Actemra. Headaches but sed rate went to zero! Stopped everything. Down to 4mg prednisone, down 1mg per month. The hand
and jaw pain is returning. I
am so uncomfortable in the mornings. Rheumatologist says it's fibromyalgia. I totally disagree. Fairly sure I have/had GCA. Was treated for it 8 years ago and didn't know it could return. Never had options for biopsy or biological, had to beg for something to help me. Will see what the CT scan shows. No one here in this forum has commented on nodules. I was negative for RA and Lupus. Bottom line, choose carefully but educate yourself the best you can. I'm not in a flare, pushing through the pain and really trying to become prednisone free. Wishing you some relief!