I have peripheral neuropathy in fingertips and toes from good old chemo. There are so many different claims out there. My thought is just try sone B12.
I do not have pain . Just numbness
I also suspect, at least in my case, it could be a vitamin B12 deficiency. A year ago my doctor said I had too much B12 and to stop taking supplements. So, I did just that.
I haven't done bloodwork yet this year, but it's on my list of things to do next.
I have no suggestions on how to deal with numbness. Have you tried rolling on a lacrosse ball? That has helped for me with my left arm, although that was a pinched nerve and not related to PN. I have found, however, that rolling my left on the lacrosse ball in certain pressure points helps.
What I find interesting is that a large percentage of people with PN have a lot of pain and no drugs seem to help. Then there are others who are painless but have the weakness and tingling in their legs and feet. There’s a lot of Add’s on line that promise relief and cures. Beware, they are all full of cow manure. I’m one of the painless ones. I walk like I drank a bottle of Scotch, and my balance is not good. PN is here to stay, and we need to find what works for us. There are shoes that help and a cane helps with balance when walking. PN is here to stay and we need to deal with it. I had to leave a great job because of PN. I didn’t have the strength in my left leg and foot to get the left brake down and when you’re landing on a 6000 ft runway at 115kts, you gotta get it stopped.
What I find interesting is that a large percentage of people with PN have a lot of pain and no drugs seem to help. Then there are others who are painless but have the weakness and tingling in their legs and feet. There’s a lot of Add’s on line that promise relief and cures. Beware, they are all full of cow manure. I’m one of the painless ones. I walk like I drank a bottle of Scotch, and my balance is not good. PN is here to stay, and we need to find what works for us. There are shoes that help and a cane helps with balance when walking. PN is here to stay and we need to deal with it. I had to leave a great job because of PN. I didn’t have the strength in my left leg and foot to get the left brake down and when you’re landing on a 6000 ft runway at 115kts, you gotta get it stopped.
I, too, am one of the painless ones. You mention: "There are shoes that help … " Can you tell me what shoes work best for you? Currently, I'm wearing Sketchers. They're not bad, but I'm always curious about what others have found.
You say, too, "I had to leave a great job because of PN." Ditto! I made my living on stage. When I grew too afraid I'd fall in front of a paying audience, I thought, Well, Ray, that's it! Time to find another line of work.
I’ve been dealing with it 7yrs now. It’s in both legs, feet,and hands. I’m in a wheelchair. I’ve had nerve ablation, spinal stimulator, 2 Fusions. I’m left with pain, burning, and numbness. I’ve tried Gabapentin, Lyrica, Elavil. My Doctor limited me to 3 Tylenol 4 a day. I’ve tried all the over counter creams,and every pill they say helps. I take a strong vitamin plus magnesium and a combo of B vitamins. Any help out there?
I’ve been dealing with it 7yrs now. It’s in both legs, feet,and hands. I’m in a wheelchair. I’ve had nerve ablation, spinal stimulator, 2 Fusions. I’m left with pain, burning, and numbness. I’ve tried Gabapentin, Lyrica, Elavil. My Doctor limited me to 3 Tylenol 4 a day. I’ve tried all the over counter creams,and every pill they say helps. I take a strong vitamin plus magnesium and a combo of B vitamins. Any help out there?
Hello @marytech46hh, Welcome back. I'm sorry to hear that you are still looking for some pain relief since the last time you posted in 2023. Have you discussed pain management with your doctor?
I, too, am one of the painless ones. You mention: "There are shoes that help … " Can you tell me what shoes work best for you? Currently, I'm wearing Sketchers. They're not bad, but I'm always curious about what others have found.
You say, too, "I had to leave a great job because of PN." Ditto! I made my living on stage. When I grew too afraid I'd fall in front of a paying audience, I thought, Well, Ray, that's it! Time to find another line of work.
Hi Ray, Ortho Feet Shoes do a good job of helping with walking and balance. There are stores that sell them and they are also online. I would suggest getting them in the store. After market inserts help too if your arches are high. Good luck.
Hi Ray, Ortho Feet Shoes do a good job of helping with walking and balance. There are stores that sell them and they are also online. I would suggest getting them in the store. After market inserts help too if your arches are high. Good luck.
Thanks, @cit10jetjockey Ortho is one shoe I've yet to try. My arches are the opposite of "high," whatever that might be. "Pancake flat"sums it up pretty well. Orthotics have become indispensible because I was first fitted with in the mid-1980s in the days when I was doing lots of competitive long-distance running. After all these years, my lower body joints have become spoiled: they weep (ache!) if I'm not wearing them. ––Ray
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I also suspect, at least in my case, it could be a vitamin B12 deficiency. A year ago my doctor said I had too much B12 and to stop taking supplements. So, I did just that.
I haven't done bloodwork yet this year, but it's on my list of things to do next.
I have no suggestions on how to deal with numbness. Have you tried rolling on a lacrosse ball? That has helped for me with my left arm, although that was a pinched nerve and not related to PN. I have found, however, that rolling my left on the lacrosse ball in certain pressure points helps.
What I find interesting is that a large percentage of people with PN have a lot of pain and no drugs seem to help. Then there are others who are painless but have the weakness and tingling in their legs and feet. There’s a lot of Add’s on line that promise relief and cures. Beware, they are all full of cow manure. I’m one of the painless ones. I walk like I drank a bottle of Scotch, and my balance is not good. PN is here to stay, and we need to find what works for us. There are shoes that help and a cane helps with balance when walking. PN is here to stay and we need to deal with it. I had to leave a great job because of PN. I didn’t have the strength in my left leg and foot to get the left brake down and when you’re landing on a 6000 ft runway at 115kts, you gotta get it stopped.
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1 ReactionI do not have anymore pain. I was left with numbness in the leg, feet and toes. Any help for this?
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1 ReactionHello, @cit10jetjockey
I, too, am one of the painless ones. You mention: "There are shoes that help … " Can you tell me what shoes work best for you? Currently, I'm wearing Sketchers. They're not bad, but I'm always curious about what others have found.
You say, too, "I had to leave a great job because of PN." Ditto! I made my living on stage. When I grew too afraid I'd fall in front of a paying audience, I thought, Well, Ray, that's it! Time to find another line of work.
Cheers!
Ray (@ray666)
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1 ReactionI’ve been dealing with it 7yrs now. It’s in both legs, feet,and hands. I’m in a wheelchair. I’ve had nerve ablation, spinal stimulator, 2 Fusions. I’m left with pain, burning, and numbness. I’ve tried Gabapentin, Lyrica, Elavil. My Doctor limited me to 3 Tylenol 4 a day. I’ve tried all the over counter creams,and every pill they say helps. I take a strong vitamin plus magnesium and a combo of B vitamins. Any help out there?
Hello @marytech46hh, Welcome back. I'm sorry to hear that you are still looking for some pain relief since the last time you posted in 2023. Have you discussed pain management with your doctor?
There is another discussion that I mentioned the last time you posted. Did you get a chance to look at it?
-- Anyone had a successful experience w/ Mayo Pain Rehabilitation Center?: https://connect.mayoclinic.org/discussion/has-anyone-successful-experience-with-mayo-pain-rehabilitation-center/.
Hi Ray, Ortho Feet Shoes do a good job of helping with walking and balance. There are stores that sell them and they are also online. I would suggest getting them in the store. After market inserts help too if your arches are high. Good luck.
Thanks, @cit10jetjockey Ortho is one shoe I've yet to try. My arches are the opposite of "high," whatever that might be. "Pancake flat"sums it up pretty well. Orthotics have become indispensible because I was first fitted with in the mid-1980s in the days when I was doing lots of competitive long-distance running. After all these years, my lower body joints have become spoiled: they weep (ache!) if I'm not wearing them. ––Ray