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Polymyalgia Rheumatica (PMR) | Last Active: Jul 18 10:56pm | Replies (15)
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Some questions for you - how much prednisone are you taking? Are you tapering the prednisone? Have you seen a cardiologist? My first thoughts are that you might have a heart problem, or else adrenal insufficiency if your prednisone is down to the level where the adrenal glands need to become active again. Another possibility could be a PMR flare.
Do you have any other symptoms besides limited energy?
Replies to "Some questions for you - how much prednisone are you taking? Are you tapering the prednisone?..."
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Oh yes, I have many other symptoms and I've had them for many years, well before my first encounter with PMR or prednisone. It's been more or less like I'm feeling now but now it seems much worse.
My heart has been checked out and basically it seems to be OK. I do have chest pain but it's part of my whole shoulder girdle, shoulder blades, upper thoracic pain and stiffness I think.
You may be right about adrenal insufficiency now that I'm on 5mg of prednisone, down from 60mg a few months ago.
What I don't understand is why I've had these symptoms for years but my cortisol blood tests have always been fine. I've seen all sorts of specialists but still no answers.
Anyway, I just don't see a way to get my energy levels back.
Mike posted on this thread with his experiences with extreme fatiguue. Sounds like, in part, I might be going through the same thing. Thanks for your reply.