I can’t imagine the amount of work and energy you have had to put in during FOUR YEARS! My wife was just diagnosed a few months ago and I am already mentally and physically exhausted. Her tumor was inoperable but we had three hospitalizations in a months time and got started on Chemo and radiation as soon as it was feasible. Her deterioration has been rapid and so it has been difficult to adjust quickly to taking care of her. She was an active, independent gym rat and now she can’t walk or speak. I felt at first that I needed to do it all and found it hard to accept help. My family had to convince me that I couldn’t go it alone but it still makes me feel weird having someone else take my wife to the bathroom or fold my laundry. I haven’t had to deal with verbal outbursts because she lost her ability to speak but I can see the frustration and anger and grief in her eyes but I can’t always figure out what she needs or how I can help. I can’t imagine how you have done it for so long. You must be an amazing person. My wife is not going to be a long term survivor but I know that I am going to need all the help I can get during the time she is with us. She and I have both had to lose our independence and learn to accept the generosity of others.