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Profile picture for Michael Lavacot @michaellavacot

Hi @danaso1989 – I have a few comments on your situation.

Firstly, I’m surprised the Prolia could be the cause of hair loss as none of the major clinical trials call it out as an adverse event. I wonder if there could be another reason for the hair loss. I know hair loss is a problem for older women and even my wife is taking oral minoxidil for it with great results.

Secondly, your doctor seems to be up on the latest information on transitioning from Prolia. Their advice is spot on to doctor Bente Langdahl, who is probably the most knowledgeable doctor on the topic. I put together a presentation on Prolia that I recommend you watch to get your feet planted on the subject https://youtu.be/hnj1tFUAK3M . This will help you work with your doctor for the best results. Attached is a picture of the transition from my presentation but I discuss Dr. Langdahl’s trials if you watch the video.

Finally, I know you transitioned to Reclast due to hair loss, but at -2.7 T-Score, you really would want to switch back to Prolia at this point to get to a safer score. Moving to Reclast at this point will not likely get you to a desired result. I discuss this as well in the presentation.

I am not a doctor, but have done a lot of research. Use this information to work with your doctor.

I wish you the best of luck!

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Replies to "Hi @danaso1989 – I have a few comments on your situation. Firstly, I’m surprised the Prolia..."

@michaellavacot, I have read of many women suffering severe hair loss attributed to Prolia. I have not double-checked the study info, but read elsewhere that it is a rare side effect.

Hello Michael,
I have a question for you. I have had my 2nd injection of Prolia after being on Evenity for one year for a Tscore of -4.6. After one year of Evenity I had a T score of -3.3 and have had 2 injections of Prolia. My CTx as of June 25th 4 mos after Prolia is 50. The last one in Dec 2024 was 50. I initially started with CTx of 933. Is 50 too low of a CTx score?