Replies to Hello, my NET is metastasized to my liver from my lung diagnosis in Dec 2022. My…

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Neuroendocrine Tumors (NETs) | Last Active: Aug 23 1:27pm | Replies (169)

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@nana120

Hello, my NET is metastasized to my liver from my lung diagnosis in Dec 2022. My most recent treatment was a Y90 in Dec 2024 after a series of lanreotide injections & oral Temozolomide. I’m waiting to get final results from an MRI tomorrow before we know how successful the Y90 was. Remember this is a marathon not a sprint. Good luck!

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Replies to "Hello, my NET is metastasized to my liver from my lung diagnosis in Dec 2022. My..."

blm1024 | @blm1024 | Jul 17 9:21am

Hi
I am curious about your diagnosis & treatment. What type & stage was your NET? What was your course of treatment?
The reason I ask is
I had a 5cm NET in my left lung and I had a lower lobectomy in February 2025. Will start my surveillance CT scans in August. I’m nervous about it all but especially the risk of metastases.
Thank you!!!

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